<\/em>por Lucio Carvalho<\/p>\nAcaba de ser criado o primeiro instituto dedicado de forma global \u00e0 s\u00edndrome de Down. \u00c9 o primeiro no mundo em que se abordar\u00e1 tanto a investiga\u00e7\u00e3o b\u00e1sica como os cuidados de aten\u00e7\u00e3o cl\u00ednica \u00e0s pessoas com s\u00edndrome de Down. O Instituto ter\u00e1 sua sede em Denver, Colorado (EUA) e ser\u00e1 parte integrante da Universidade do Colorado, em seu campus m\u00e9dico de Anschutz. Sua constru\u00e7\u00e3o apenas foi poss\u00edvel gra\u00e7as a uma doa\u00e7\u00e3o de 34 milh\u00f5es de d\u00f3lares realizada pelo casal Anna e John Sie, av\u00f3s de Sophia, uma menina de 5 anos que nasceu com a s\u00edndrome de Down. Seu desejo \u00e9 colaborar principalmente com a melhoria da qualidade de vida das pessoas com s\u00edndrome de Down.<\/p>\n
O Instituto levar\u00e1 o nome de Linda Crnic Institute for Down Syndrome, em homenagem a uma renomada pesquisadora e professora de pediatria e psiquiatria na Universidade de Colorado, que faleceu em raz\u00e3o de um acidente de bicicleta h\u00e1 quatro anos. A Dra. Crnic hava ajudado e assessorado de maneira muito especial aos pais de Sophia (Michelle e Tom Whitten), quando receberam o diagn\u00f3stico pr\u00e9-natal de que sua filha nasceria com a s\u00edndrome de Down e decidiram manter a gravidez. A Dra. Crnic h\u00e1 muito j\u00e1 pesquisava com interesse especial a s\u00edndrome de Down.<\/p>\n
O novo Instituto ser\u00e1 dirigido pelo Dr. William C. Mobley, que havia sido at\u00e9 agora diretor do Departamento de Neurologia e Ci\u00eancias Neurol\u00f3gicas da Universidade de Stanford (California) e que tamb\u00e9m h\u00e1 anos trabalha de forma incans\u00e1vel sobre a s\u00edndrome de Down e \u00e9 na atualidade uma figura de destaque na investiga\u00e7\u00e3o cient\u00edfica, cl\u00ednica e b\u00e1sica sobre o assunto. Seu objetivo principal \u00e9 encontrar as bases das altera\u00e7\u00f5es cerebrais que ocorrem na s\u00edndrome de Down, com o objteivo de obter interven\u00e7\u00f5es medicamentosas que reduzam as manifesta\u00e7\u00e3os da defici\u00eancia intelectual. Al\u00e9m disso, o Dr. Mobley mant\u00e9m estreitas rela\u00e7\u00f5es com os grupos de pesquisa sobre s\u00edndrome de Down de todo o mundo, inclusive os espanh\u00f3is de Santander e Barcelona.<\/p>\n
\n+ informa\u00e7\u00f5es<\/strong><\/p>\n<\/strong> O Linda Crnic Institute for Down Syndrome foi inaugurado em 22 de setembro de 2008 e contou com a apresenta\u00e7\u00e3o de um coral de pessoas com a s\u00edndrome de Down produzido e conduzido pelo compositor e maestro Quincy Jones.
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\nAssista reportagem em v\u00eddeo neste link (em ingl\u00eas)<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"Traduzido do Canal Down 21 por Lucio Carvalho Acaba de ser criado o primeiro instituto dedicado de forma global \u00e0 s\u00edndrome de Down. \u00c9 o primeiro no mundo em que se abordar\u00e1 tanto a investiga\u00e7\u00e3o b\u00e1sica como os cuidados de aten\u00e7\u00e3o cl\u00ednica \u00e0s pessoas com s\u00edndrome de Down. O Instituto ter\u00e1 sua sede em Denver, […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[4],"tags":[],"class_list":["post-1574","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"\n
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