{"id":21124,"date":"2011-09-29T07:25:45","date_gmt":"2011-09-29T10:25:45","guid":{"rendered":"http:\/\/www.inclusive.org.br\/?p=21124"},"modified":"2011-09-29T07:25:45","modified_gmt":"2011-09-29T10:25:45","slug":"na-nova-zelandia-grupo-de-pais-busca-frear-o-genocidio-de-pessoas-com-sindrome-de-down","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=21124","title":{"rendered":"Na Nova Zel\u00e2ndia, grupo de pais busca frear o "genoc\u00eddio" de pessoas com s\u00edndrome de Down"},"content":{"rendered":"
\"Rebecca
Rebecca Sullivan - www.savingdows.com<\/figcaption><\/figure>\n

Por Patricia Almeida<\/em><\/p>\n

Enquanto a evolu\u00e7\u00e3o da ci\u00eancia avan\u00e7a na dire\u00e7\u00e3o de novas terapias que poder\u00e3o melhorar a qualidade de vida de milh\u00f5es de pessoas com s\u00edndrome de Down em todo o mundo, como visto recentemente na mat\u00e9ria da revista do jornal The New York Times “Um medicamento para a s\u00edndrome de Down” \"Link<\/a>, a mesma ci\u00eancia p\u00f5e em risco milh\u00f5es de novas vidas de beb\u00eas em gesta\u00e7\u00e3o com a trissomia.<\/p>\n

Para fazer frente ao que qualifica como \u201cexterm\u00ednio\u201d de beb\u00eas com s\u00edndrome de Down antes do nascimento, o grupo Savingdowns, da Nova Zel\u00e2ndia, entrou com queixa contra o pa\u00eds no Tribunal de Justi\u00e7a Internacional em Haia, na Holanda.<\/p>\n

Segundo o grupo Saving Downs, o novo programa de triagem pr\u00e9-natal financiado pelo governo neozeland\u00eas identifica gravidezes de beb\u00eas com s\u00edndrome de Down que s\u00e3o encaminhadas para o aborto seletivo. (O aborto \u00e9 permitido na Nova Zel\u00e2ndia)<\/p>\n

Formado por pais e irm\u00e3os de pessoas com s\u00edndrome de Down, o Saving Downs tem a miss\u00e3o de defender a vida das pessoas com s\u00edndrome de Down, desde a concep\u00e7\u00e3o at\u00e9 a morte natural, para que sejam livres de qualquer forma de discrimina\u00e7\u00e3o. O aborto seletivo \u00e9 o que chamam de “c\u00famulo da discrimina\u00e7\u00e3o”.<\/p>\n

A Inclusive<\/strong> entrevistou Mike Sullivan, um engenheiro civil aut\u00f4nomo e professor de Yoga, que \u00e9 o porta-voz da Savingdowns. Ele vive em Whangarei, Nova Zel\u00e2ndia, com a mulher Rae e Rebecca, filha de tr\u00eas anos que tem s\u00edndrome de Down. Mike apareceu no recente document\u00e1rio “Down, mas n\u00e3o para fora” sobre a amea\u00e7a e os efeitos sociais que a triagem pr\u00e9-natal tem representado para a comunidade de pessoas com s\u00edndrome de Down.<\/p>\n

Por que voc\u00ea acha que o governo est\u00e1 impedindo os beb\u00eas com s\u00edndrome de Down de nascer?<\/strong><\/p>\n

Ignor\u00e2ncia, medo, preconceito e raz\u00f5es econ\u00f4micas. H\u00e1 uma presun\u00e7\u00e3o falsa de que as pessoas com s\u00edndrome de Down t\u00eam menos valor e s\u00e3o menos humanos do que os outros. Por isso elas s\u00e3o direcionadas para o aborto seletivo. Esta no\u00e7\u00e3o \u00e9 basicamente fundada na ignor\u00e2ncia e no medo.<\/p>\n

Em \u00faltima an\u00e1lise, \u00e9 uma quest\u00e3o econ\u00f4mica. Em um relat\u00f3rio para a Unidade Nacional de Triagem Neonatal da Nova Zel\u00e2ndia h\u00e1 uma passagem que \u00e9 autoexplicativa “O custo econ\u00f4mico da triagem compensam os recursos elevados associados \u00e0s necessidades de cuidados ao longo da vida de um indiv\u00edduo com s\u00edndrome de Down”. O governo investe US$ 75.000 para detectar cada beb\u00ea com s\u00edndrome de Down no \u00fatero. Quaisquer problemas m\u00e9dicos que podem exigir cuidados seriam detectados no pr\u00e9-natal, que \u00e9 centrado na vida. O governo est\u00e1 investindo para evitar nascimentos por raz\u00f5es econ\u00f4micas.<\/p>\n

Como o movimento come\u00e7ou?<\/strong><\/p>\n

Tudo come\u00e7ou a partir de uma discuss\u00e3o no blog Upsideofdown iniciada por De-Anne Jensen. De-Anne \u00e9 uma das co-autoras da den\u00fancia ao Tribunal de Justi\u00e7a Internacional (TPI). Esta foi a sua primeira mensagem sobre o assunto no Upsideofdown:<\/p>\n

Eu estava em um show para fam\u00edlias ontem e fui abordada por uma mulher que estava com seu filho de 9 meses de idade com ela.<\/p>\n

Primeiro ela me perguntou se eu estava “procurando castigo” por ter uma “crian\u00e7a down” e em seguida, ter outro beb\u00ea. Eu brinquei e disse: Eu adoro me manter ocupada, e o James\u00a0 continuava correndo em c\u00edrculos e eu tentando peg\u00e1-lo (fa\u00e7o isso para me manter em forma\u2026).<\/p>\n

Ela ent\u00e3o me disse que teve uma “menina down”, mas decidiu n\u00e3o mant\u00ea-la. Ent\u00e3o eu pensei que ela tivesse entregado a filha para ado\u00e7\u00e3o, mas na verdade ela foi induzida com 19 semanas e nasceu e, claro, a menina morreu. Quando eu perguntei se isso tinha acontecido na Nova Zel\u00e2ndia, ela disse com naturalidade: “sim, e voc\u00ea pagou pelo servi\u00e7o” (o sistema de sa\u00fade na Nova Zel\u00e2ndia \u00e9 p\u00fablico e gratuito).<\/p>\n

Obviamente eu fiquei sem palavras (quem me conhece sabe que isso raramente acontece). Ela ent\u00e3o admitiu que n\u00e3o houvesse procurado saber muito sobre as pessoas com s\u00edndrome de Down e ainda n\u00e3o sabia muito sobre o assunto. Ela s\u00f3 sabia que aquilo n\u00e3o era para eles e que n\u00e3o era justo para com seu outro filho. Que as pessoas com s\u00edndrome de Down n\u00e3o t\u00eam boa qualidade de vida e que todos eles t\u00eam problemas m\u00e9dicos. E ela me perguntou se eu tinha algum arrependimento, \u00e9 claro que eu expliquei que James foi uma das coisas mais incr\u00edveis que eu j\u00e1 fiz na minha vida. Ela me perguntou se James teve problemas de sa\u00fade e eu lhe disse: “apenas seu cora\u00e7\u00e3o santo!” Ela, ent\u00e3o, foi embora e, olhando para James, disse: “ele parece com qualquer crian\u00e7a de 18 meses de idade, quase normal”.<\/p>\n

Olhando pra tr\u00e1s, era quase como se ela estivesse esperando que eu a fizesse se sentir melhor pelo que ela fez. Mas na verdade aquilo me virou o est\u00f4mago, porque ela estava explicando que\u00a0 no final das contas sua filha n\u00e3o tinha quaisquer problemas de sa\u00fade e ela era t\u00e3o bonita e transmitia uma paz (palavras dela). Eu teria revidado mas eu estava segurando meus dois filhos e o carrinho e combinei encontrar com Lance naquele lugar, ent\u00e3o eu n\u00e3o podia ir embora! Eu n\u00e3o tinha ideia que isso fosse permitido na Nova Zel\u00e2ndia!<\/p>\n

Agora estou com essa conversa presa na minha cabe\u00e7a para sempre … e o pensamento de que esta mulher n\u00e3o tem ideia do que ela perdeu.<\/p>\n

A mensagem levou o blog para uma discuss\u00e3o vibrante, j\u00e1 que a maioria de n\u00f3s n\u00e3o tinha ideia do que estava acontecendo. Isso acabou por dar \u00e0 luz um grupo de pais que agora trabalha junto contra a sele\u00e7\u00e3o gen\u00e9tica utilizada para direcionar os beb\u00eas com s\u00edndrome de Down para o aborto seletivo.<\/p>\n

Como surgiu a ideia de ir ao Tribunal de Justi\u00e7a Internacional?<\/strong><\/p>\n

Inicialmente uma das nossas apoiadoras come\u00e7ou uma discuss\u00e3o em torno do uso da “eugenia”. Ela argumentou que era “genoc\u00eddio”. “Geno” \u00e9 para “constitui\u00e7\u00e3o gen\u00e9tica” em grego e “Cide” – latim para “matan\u00e7a de” – portanto, “genoc\u00eddio” \u00e9 a matan\u00e7a de pessoas com base em sua constitui\u00e7\u00e3o gen\u00e9tica. Ent\u00e3o me deparei com o artigo sobre o genoc\u00eddio e crimes contra a humanidade em rela\u00e7\u00e3o \u00e0s pessoas com defici\u00eancia, no e-notes, que me deu a ideia de levar o caso ao tribunal.<\/p>\n

Baseados em qu\u00ea voc\u00eas est\u00e3o apelando para o Tribunal de Justi\u00e7a Internacional?<\/strong><\/p>\n

Nossos motivos s\u00e3o viola\u00e7\u00f5es dos artigos 6 e 7 do Estatuto de Roma atrav\u00e9s da persegui\u00e7\u00e3o de um grupo identific\u00e1vel da popula\u00e7\u00e3o civil (aqueles com s\u00edndrome de Down, identificados por seus 3 cromossomos\u00a0 21) atrav\u00e9s de medidas que impe\u00e7am o seu nascimento.<\/p>\n

Nosso argumento \u00e9 que as pessoas com s\u00edndrome de Down s\u00e3o um grupo est\u00e1vel e permanente e, como tal, constitui o status de um grupo protegido. No ac\u00f3rd\u00e3o do Tribunal De Justi\u00e7a Internacional Akayesa, datado de 2 de setembro de 1998, relativo ao genoc\u00eddio em Ruanda, a defini\u00e7\u00e3o de um grupo protegido foi reconhecido para ser aplicado a qualquer grupo est\u00e1vel e permanente. O artigo 701 do referido ju\u00edzo diz “A C\u00e2mara concluiu que era necess\u00e1rio, acima de tudo, respeitar a inten\u00e7\u00e3o dos redatores da Conven\u00e7\u00e3o sobre Genoc\u00eddio, que, de acordo com trabalhos preparat\u00f3rios, foi claramente de proteger qualquer grupo est\u00e1vel e permanente”.<\/p>\n

Al\u00e9m disso, como as pessoas com s\u00edndrome de Down s\u00e3o geneticamente ligadas por ter em comum um terceiro cromossomo 21 e partilhar as mesmas caracter\u00edsticas f\u00edsicas, podem ser definidas tanto como um grupo \u00e9tnico quanto racial: nos dois casos s\u00e3o pessoas distinguidas com base em caracter\u00edsticas gen\u00e9ticas e f\u00edsicas comuns, segundo qualquer defini\u00e7\u00e3o de dicion\u00e1rio.<\/p>\n

Voc\u00eas tentaram falar com as autoridades da Nova Zel\u00e2ndia antes de recorrer ao Tribunal De Justi\u00e7a Internacional?<\/strong><\/p>\n

V\u00e1rios contatos foram feitos diretamente com o Ministro da Sa\u00fade, que se recusou a reconhecer as nossas preocupa\u00e7\u00f5es.<\/p>\n

A quest\u00e3o foi levantada formalmente atrav\u00e9s da Comiss\u00e3o de Direitos Humanos da Nova Zel\u00e2ndia, que determinou que as pessoas com s\u00edndrome de Down n\u00e3o s\u00e3o protegidas nos termos do artigo 6 do Estatuto de Roma. Depois o assunto foi levado ao Diretor para Procedimentos de Direitos Humanos da Nova Zel\u00e2ndia. Ele tamb\u00e9m determinou que as pessoas com s\u00edndrome de Down n\u00e3o s\u00e3o protegidas nos termos do artigo 6 do Estatuto de Roma, mas indicou que se eles estivessem protegidos pelo Estatuto de Roma, o programa de triagem que facilitasse o aborto seletivo de tal grupo com base em sua identidade seria uma viola\u00e7\u00e3o do Estatuto de Roma.<\/p>\n

O Tribunal De Justi\u00e7a Internacional foi convidado a se pronunciar sobre se as pessoas com s\u00edndrome de Down s\u00e3o protegidas como grupo permanente e est\u00e1vel de pessoas.<\/p>\n

Voc\u00ea sabe a rea\u00e7\u00e3o de seu governo com rela\u00e7\u00e3o \u00e0 queixa ao Tribunal Internacional?<\/strong><\/p>\n

Eles negam as nossas reivindica\u00e7\u00f5es.<\/p>\n

O que voc\u00eas esperam com estas a\u00e7\u00f5es?<\/strong><\/p>\n

Esperamos que o tribunal exija que a Nova Zel\u00e2ndia suspenda a pr\u00e1tica do aborto seletivo de pessoas com s\u00edndrome de Down, conforme previsto em suas obriga\u00e7\u00f5es sob o Tratado de Roma.<\/p>\n

H\u00e1 adultos com s\u00edndrome de Down envolvidos na campanha? O que eles pensam sobre isso?<\/strong><\/p>\n

Sim, mas n\u00e3o como signat\u00e1rios da queixa. Como Alex Snedden (entrevistado com s\u00edndrome de Down) disse no document\u00e1rio Down, mas n\u00e3o fora<\/em>: \u201cN\u00e3o tenham medo!\u201d<\/p>\n

O que defensores dos direitos humanos podem fazer para ajudar a causa?<\/strong><\/p>\n

Visitem o nosso web site www.savingdowns.com \"Link<\/a><\/strong> e a p\u00e1gina “ajudem-nos a salvar vidas”. Fiquem amigos e \u201ccurtam\u201d nossa p\u00e1gina no Facebook “Saving Down Syndrome”. Ponham a boca no trombone e promovam a vida de todas as pessoas, perfeitas como elas s\u00e3o.<\/p>\n

Fonte: Inclusive<\/p>\n

In New Zeland, parents try to stop “genocide” of persons with Down syndrome<\/strong><\/h2>\n

As science advances towards new therapies that will improve the quality of life of millions of people with Down syndrome worldwide as seen on the recent story on The New York Times Magazine, \u201cA drug for Down syndrome\u201d<\/a>, the same science puts at risk millions of lives of unborn babies with the genetic occurrence.<\/p>\n

A group of parents and siblings of people with Down syndrome was formed in New Zealand in response to the Government’s new state funded eugenic antenatal screening programme that targets and identifies unborn children with Down syndrome for selective abortion. Saving Downs advocates for the life of people with Down syndrome from conception to natural death and for them to be free from any form of discrimination. According to them, elective abortion is the ultimate discrimination.<\/p>\n

Inclusive interviewed Mike Sullivan, a self employed civil engineer and a yoga teacher, who is the spokesman for Saving Downs. He lives in Whangarei, New Zealand, with wife Rae and daughter Rebecca, who is 3 and has Down syndrome. He was featured in the recent 60 Minutes documentary \u201cDown but not out\u201d about the threat antenatal screening is to the Down syndrome community.<\/p>\n

Why do you think the government is trying to avoid babies with Down syndrome from being born?<\/strong><\/p>\n

Ignorance, fear, prejudice and economics. There is a false presumption that people with Down syndrome are of less value and less human than others so they are targeted for selective abortion. This is basically founded in ignorance and fear.<\/p>\n

Ultimately it is about economics. In a report for the New Zealand National Screening Unit there is the self explanatory statement \u201cThe economic costs of screening outweigh the high costs associated with the long care needs of an individual with Down syndrome\u201d. The government invests $75,000 to detect every baby with Down syndrome in-utero. Any medical issues that may require care would be detected in standard antenatal care that is focussed on life. The government is investing to avoid births for economic reasons.<\/p>\n

How did the movement begin?<\/strong><\/p>\n

It began from a blog discussion on upsideofdown started by De-Anne Jensen. De-Anne is one of the co-complainants to the International Criminal Court (ICC). This was her initial post on upsideofdown:<\/p>\n

I was at a family show yesterday and was approached by a woman, and she had her 9 month old son with her.<\/p>\n

First she asked me if I was a sucker for punishment for having a ‘downs kid’ then having another baby close after. I joked and said, I love keeping busy, and because James kept bolting it and I was trying to catch him (I do this to keep myself fit of course).<\/p>\n

She then went on to tell me she had a \u201cdowns girl\u201d but decided not to keep \u201cit\u201d. So I thought she adopted her out, but, actually she was induced at 19 weeks and birthed the little girl and of course the girl died. When I asked her if it was in this country, she said matter of factually \u201cyes if you pay for it yourself\u201d.<\/p>\n

Naturally I was speechless (anyone who knows me knows this doesn\u2019t normally happen).
\nShe then admitted they hadn\u2019t found out much about people with Down syndrome and don\u2019t know much about it. She just new it wasn\u2019t for them and not fair on their other child, and that people with Down syndrome don\u2019t have a quality of life and they all have medical problems. And she asked me if I had any regrets, which of course I explained that having James was one of the most amazing things I\u2019ve ever done in my life. She asked me if James had medical problems and I told her just his holy heart! She then departed with looking at James then said \u201che just looks like every other 18 month old out there, almost normal\u201d.<\/p>\n

Looking back it was almost like she was waiting for me to make her feel better about what she did. But actually it just made me sick to my stomach because she was explaining that her daughter actually didn\u2019t have any medical problems after all and she was so beautiful and peaceful looking (her words). I would have bolted but I was holding both my kids and the pram and agreed to meet Lance in that spot so I couldn\u2019t go! So I had no idea this was allowed in New Zealand?<\/p>\n

So now I\u2019m stuck with this conversation in my head for ever……and the thought that this woman has no idea what she missed out on.<\/p>\n

That blog lead to a vibrant discussion as most of us had no idea what was going on. This eventually gave birth to a group of parents who now work together to advocate against genetic screening being used for targeting unborn children with Down syndrome for selective abortion.<\/p>\n

How did the idea to go to the International Criminal Court come about?<\/strong><\/p>\n

Initially one of our supporters challenged our discussions around the use of \u201ceugenics\u201d. She argued it was \u201cgenocide\u201d. \u201cGeno\u201d Creek for \u201cgenetic constitution\u201d and \u201cCide\u201d \u2013 French for \u201cthe killing of\u201d \u2013 therefore \u201cgenocide\u201d the killing of people based on their genetic constitution. Then I came across the article on Genocide and Crimes Against Humanity in relation to the “Disabled” on e-notes and that gave me the idea to pursue it through the court.<\/p>\n

In what grounds are you appealing to the International Criminal Court?<\/strong><\/p>\n

Our grounds are breaches of Articles 6 and 7 of the Rome Statute through the persecution of an identifiable group of the civilian population (those with Down syndrome, identified by their 3rd 21st Chromosome) through measures that prevent their birth.<\/p>\n

Our argument is that people with Down syndrome are a stable and permanent group and as such falls within the status of a protected group. In the International Criminal Court\u2019s Akayesa judgement, dated 2nd September 1998, relating to genocide in Rwanda, the definition of a protected group was recognised to apply to any stable and permanent group. Item 701 of that judgement states \u201cThe Chamber found that it was necessary, above all, to respect the intent of the drafters of the Genocide Convention which, according to the travaux pr\u00e9paratoires, was clearly to protect any stable and permanent group\u201d.<\/p>\n

Additionally, as people with Down syndrome are genetically linked through their commonality in having a third 21st chromosome and share the same physical characteristics they could be defined as both an ethnical group and a racial group, both of which relate to people distinguished on the basis of common genetically linked characteristics and physical characteristics under standard dictionary definitions.<\/p>\n

Have you tried talking to the New Zealand authorities before that?<\/strong><\/p>\n

Numerous approaches have been made directly to the Minister of Health, who has refused to acknowledge our concerns.<\/p>\n

The matter has been raised formally through the New Zealand Human Rights Commission, who has determined that people with Down syndrome are not protected under Article 6 of the Rome Statute. The matter was subsequently raised with the New Zealand Director of Human Rights Proceedings. The Director of Human Rights Proceedings also determined that people with Down syndrome are not protected under Article 6 of the Rome Statute, but indicated that should they have protection under the Rome Statute, then a screening programme that would ultimately facilitate the selective abortion of such a group on the basis of their identity would breach the Rome Statute.<\/p>\n

The International Criminal Court has been asked to rule on whether people with Down syndrome are protected as permanent and stable group of people.<\/p>\n

Do you know your government’s reaction to the complaint to the International Court?<\/strong><\/p>\n

They deny our claims.<\/p>\n

What do you expect from these actions?<\/strong><\/p>\n

We expect that the court will require New Zealand to cease the practice of the selective abortion of people with Down syndrome as required under their obligations under the Treaty of Rome.<\/p>\n

Do you have adults with DS involved in the campaign? What do they think about it?<\/strong><\/p>\n

Yes, but not as signatories to the application to the ICC. As Alex Snedden said on the recent 60 Minutes documentary \u201cDown but not out\u201d Don\u2019t be afraid!<\/p>\n

What can human rights advocates do to help?<\/strong><\/p>\n

Visit our web site www.savingdowns.com<\/a> and the \u201chelp us to save lives\u201d page. Be our friends and \u201clike\u201d us on our Facebook page \u201cSaving Down syndrome\u201d. Speak out and promote the life of all people, perfect as they are.<\/p>\n

Source: Inclusive<\/p>\n","protected":false},"excerpt":{"rendered":"

A Inclusive entrevistou Mike Sullivan, um engenheiro civil aut\u00f4nomo e professor de Yoga, que \u00e9 o porta-voz da Savingdowns.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[35,13,11,42],"tags":[],"class_list":["post-21124","post","type-post","status-publish","format-standard","hentry","category-de-nossa-parte","category-denuncias","category-direitos-humanos","category-entrevista"],"yoast_head":"\nNa Nova Zel\u00e2ndia, grupo de pais busca frear o "genoc\u00eddio" de pessoas com s\u00edndrome de Down -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, 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