{"id":21146,"date":"2011-09-29T07:10:14","date_gmt":"2011-09-29T10:10:14","guid":{"rendered":"http:\/\/www.inclusive.org.br\/?p=21146"},"modified":"2011-09-29T07:10:14","modified_gmt":"2011-09-29T10:10:14","slug":"estudos-concluem-que-familias-de-pessoas-com-sindrome-de-down-sao-felizes","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=21146","title":{"rendered":"Estudos concluem que fam\u00edlias de pessoas com s\u00edndrome de Down s\u00e3o felizes"},"content":{"rendered":"
\"\"
Menina com s\u00edndrome de Down<\/figcaption><\/figure>\n

Tradu\u00e7\u00e3o – Patricia Almeida
\nA partir da Disability Scope
\n<\/strong><\/p>\n

Ter um filho com s\u00edndrome de Down pode ser uma surpresa, mas \u00e9 uma boa experi\u00eancia. \u00c9 o que fam\u00edlias vem relatando em tr\u00eas novos estudos.<\/p>\n

Pesquisadores entrevistaram mais de 3.000 membros da fam\u00edlia e as pessoas com a ocorr\u00eancia cromoss\u00f4mica em todo o pa\u00eds (EUA) para o que se acredita ser um dos maiores levantamentos sobre a vida de pessoas com s\u00edndrome de Down jamais realizado. Os resultados, que ser\u00e3o publicados em tr\u00eas artigos na edi\u00e7\u00e3o de outubro do American Journal of Medical Genetics, descrevem um cen\u00e1rio bastante animador.<\/p>\n

A grande maioria dos pais disse ter uma vis\u00e3o mais positiva sobre a vida por causa de seu filho com s\u00edndrome de Down. E, quase 90 por cento dos irm\u00e3os indicaram que sentem que s\u00e3o pessoas melhores por causa de seu irm\u00e3o ou irm\u00e3 com a defici\u00eancia de desenvolvimento.<\/p>\n

Quase todos os entrevistados com s\u00edndrome de Down disseram que s\u00e3o felizes com suas vidas, consigo mesmos e com sua apar\u00eancia. Apenas 4 por cento disseram que n\u00e3o estavam satisfeitos com suas vidas.<\/p>\n

“Enquanto a discuss\u00e3o internacional gira em torno dos novos testes pr\u00e9-natais para detectar a s\u00edndrome de Down, os familiares j\u00e1 sabiam o que dizer sobre a vida com s\u00edndrome de Down”, disse Susan Levine da ONG Family Resource Associates, que trabalhou no estudo com pesquisadores do Hospital Infantil de Boston e Dana-Farber Cancer Institute. “E, mais importante, as pessoas com s\u00edndrome de Down declararam claramente que consideram suas vidas valiosas.”<\/p>\n

Pesquisadores fizeram reconhecer que a popula\u00e7\u00e3o do estudo poderia ser um pouco tendenciosa uma vez que todos os entrevistados s\u00e3o de fam\u00edlias que s\u00e3o membros de associa\u00e7\u00f5es de s\u00edndrome de Down. No entanto, eles dizem que as descobertas s\u00e3o importantes porque oferecem o “retrato maior e mais abrangente da vida com s\u00edndrome de Down at\u00e9 hoje.”<\/p>\n

Fonte: Disability Scoop<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

E o mais importante: as pr\u00f3prias pessoas com s\u00edndrome de Down se dizem satisfeitas com suas vidas. Traduzido por Patricia Almeida da Disability Scope.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[38,4,9],"tags":[],"class_list":["post-21146","post","type-post","status-publish","format-standard","hentry","category-deficiencia","category-noticias","category-traducoes"],"yoast_head":"\nEstudos concluem que fam\u00edlias de pessoas com s\u00edndrome de Down s\u00e3o felizes -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/inclusivenews.com.br\/?p=21146\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Estudos concluem que fam\u00edlias de pessoas com s\u00edndrome de Down s\u00e3o felizes -\" \/>\n<meta property=\"og:description\" content=\"E o mais importante: as pr\u00f3prias pessoas com s\u00edndrome de Down se dizem satisfeitas com suas vidas. 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