{"id":22829,"date":"2012-06-27T16:42:00","date_gmt":"2012-06-27T19:42:00","guid":{"rendered":"http:\/\/www.inclusive.org.br\/?p=22829"},"modified":"2012-06-27T16:42:00","modified_gmt":"2012-06-27T19:42:00","slug":"paralisia-cerebral-dos-aspectos-fisicos-a-inclusao-social","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=22829","title":{"rendered":"Paralisia cerebral: dos aspectos f\u00edsicos \u00e0 inclus\u00e3o social"},"content":{"rendered":"
\"C\u00e9rebro<\/a>
<\/figcaption><\/figure>\n

Diego Rodrigues e Larissa Teixeira
\nno Di\u00e1rio da Sa\u00fade<\/em><\/p>\n

A paralisia cerebral \u00e9 resultante de uma les\u00e3o ocorrida nas \u00e1reas motoras do sistema nervoso, afetando o comando do c\u00e9rebro.<\/p>\n

A condi\u00e7\u00e3o pode ocorrer em algumas \u00e1reas do c\u00e9rebro, como o cerebelo, caso em que o equil\u00edbrio \u00e9 prejudicado; ou no sistema piramidal, quando ocorre o tipo mais comum de paralisia, e a mobilidade volunt\u00e1ria da pessoa \u00e9 afetada.<\/p>\n

Em ambos os casos, as consequ\u00eancias f\u00edsicas refletem-se em dificuldades sociais e psicol\u00f3gicas, tanto para o paciente quanto para sua fam\u00edlia.<\/p>\n

Pesquisas da USP (Universidade de S\u00e3o Paulo) indicam caminhos poss\u00edveis para lidar com a quest\u00e3o.<\/p>\n

*Causas da paralisia cerebral*<\/p>\n

A neurologista infantil Clarissa Bueno explica que, al\u00e9m das diferentes \u00e1reas do c\u00e9rebro, a doen\u00e7a tamb\u00e9m pode ser provocada por diversos motivos, que incluem asfixia, hemorragia intracraniana, m\u00e1-forma\u00e7\u00e3o fetal e infec\u00e7\u00f5es.<\/p>\n

Segundo ela, as causas tamb\u00e9m influem na gravidade das malforma\u00e7\u00f5es f\u00edsicas dos pacientes.<\/p>\n

“No caso de hemorragias, as partes mais afetadas s\u00e3o os membros inferiores. Em casos de asfixia, o comprometimento costuma ser nos quatro membros e eventualmente na \u00e1rea de cogni\u00e7\u00e3o”, explica a m\u00e9dica.<\/p>\n

A reabilita\u00e7\u00e3o dos pacientes, baseada em fisioterapia, fonoaudiologia e terapia ocupacional – para o treinamento de movimentos rotineiros – consegue, em casos menos graves, bons resultados.<\/p>\n

“No caso de paralisias hemorr\u00e1gicas, \u00e9 poss\u00edvel que o paciente volte at\u00e9 mesmo a andar”. Em alguns casos, \u00e9 necess\u00e1rio aplicar relaxantes musculares, assim como toxinas botul\u00ednicas, para facilitar o movimento muscular nas \u00e1reas atingidas.<\/p>\n

Visando diminuir os riscos de paralisia nos rec\u00e9m-nascidos – que no Brasil atinge hoje cerca de atinge cerca de 10 em cada 100 mil crian\u00e7as – a neurologista ressalta a necessidade de manter um maior acompanhamento da sa\u00fade da gestante.<\/p>\n

“Os exames de rotina, estudos da condi\u00e7\u00e3o de sa\u00fade da gestante e o pr\u00e9-natal s\u00e3o indispens\u00e1veis, al\u00e9m da exist\u00eancia de boas condi\u00e7\u00f5es para o parto”, declara Clarissa.<\/p>\n

*Inclus\u00e3o social e escolar*<\/p>\n

A paralisia cerebral vai al\u00e9m dos problemas f\u00edsicos e cognitivos. A crian\u00e7a portadora da doen\u00e7a, ao crescer, enfrenta dificuldades di\u00e1rias para interagir com os colegas e frequentar escolas de educa\u00e7\u00e3o regular, j\u00e1 que muitas n\u00e3o est\u00e3o preparadas para receb\u00ea-las de uma forma inclusiva.<\/p>\n

Ticiana Melo de S\u00e1 Roriz, terapeuta ocupacional e especialista em desenvolvimento infantil, aponta que as dificuldades s\u00e3o verificadas em dois aspectos: ambientais\/arquitet\u00f4nicos e atitudinais.<\/p>\n

O primeiro caso diz respeito \u00e0 estrutura f\u00edsica. “Devemos repensar sobre a pr\u00f3pria estrutura como nossa sociedade se organiza em termos de acessibilidade, muitas vezes ineficaz ou inexiste”, comenta.<\/p>\n

O segundo fator baseia-se na atitude e no comportamento da escola e da pr\u00f3pria fam\u00edlia. “Muitas vezes a fam\u00edlia acaba optando, mesmo inconscientemente, pela superprote\u00e7\u00e3o, impedindo a crian\u00e7a de circular nos diversos espa\u00e7os sociais”, aponta.<\/p>\n

Para que a inclus\u00e3o realmente ocorra, Ticiana acredita que o primeiro e principal passo \u00e9 acreditar que a inclus\u00e3o \u00e9 poss\u00edvel. “A inclus\u00e3o n\u00e3o pode ser assegurada apenas pela vontade de um ou outro professor. A escola tem que ser inclusiva”.<\/p>\n

Para a terapeuta, a escola deve se preparar tanto na elimina\u00e7\u00e3o de barreiras arquitet\u00f4nicas, aquisi\u00e7\u00e3o de recursos de adapta\u00e7\u00e3o e acessibilidade, quanto na forma\u00e7\u00e3o continuada de professores e funcion\u00e1rios.<\/p>\n

*Sobrecarga nas fam\u00edlias*<\/p>\n

N\u00e3o \u00e9 somente a crian\u00e7a com paralisia cerebral que passa por dificuldades. Sua fam\u00edlia tamb\u00e9m \u00e9 impactada por essa situa\u00e7\u00e3o, sofrendo grandes mudan\u00e7as nos h\u00e1bitos de vida.<\/p>\n

Foi a partir dessa constata\u00e7\u00e3o que a pesquisadora e fisioterapeuta Manuela Oliveira Santos Rosset procurou identificar e descrever a sobrecarga a que est\u00e3o submetidas essas fam\u00edlias.<\/p>\n

“A doen\u00e7a requer que os familiares do paciente passem a colocar as suas pr\u00f3prias necessidades e desejos em segundo plano, vivenciando mudan\u00e7as no estilo de vida e podendo sofrer dos mesmos problemas que a crian\u00e7a”, afirma Rosset.<\/p>\n

Ela identificou como principais dificuldades a poss\u00edvel demora da aceita\u00e7\u00e3o do diagn\u00f3stico pelos pais, a falta de comunica\u00e7\u00e3o entre estes e os profissionais de sa\u00fade e a falta de acesso aos servi\u00e7os destinados ao atendimento – o que pode estar relacionado com o perfil socioecon\u00f4mico da fam\u00edlia.<\/p>\n

“A classe social afeta o modo pelo qual os membros da fam\u00edlia organizam sua vida di\u00e1ria e como enfrentam os desafios e crises. A maioria dos familiares ressalta que a condi\u00e7\u00e3o financeira \u00e9 essencial no tratamento da crian\u00e7a, pois a fam\u00edlia com renda mensal mais baixa enfrenta problemas maiores”, comenta.<\/p>\n

Assim, a pesquisadora concluiu que as fam\u00edlias devem ser orientadas pelos profissionais de sa\u00fade, de modo que a sobrecarga possa ser minimizada, ressaltando tamb\u00e9m a import\u00e2ncia da figura do “cuidador” – uma pessoa que possa aliar o conhecimento do especialista com a pr\u00e1tica cotidiana. “Quando a crian\u00e7a faz parte de uma unidade familiar, o profissional deve programar o tratamento, visando a beneficiar tanto a crian\u00e7a como sua fam\u00edlia”, completa.<\/p>\n

Fonte: Di\u00e1rio da Sa\u00fade http:\/\/www.diariodasaude.com.br\/news.php?article=paralisia-cerebral&id=7872<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Pesquisas da USP (Universidade de S\u00e3o Paulo) indicam caminhos poss\u00edveis para lidar com a quest\u00e3o.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[38,4],"tags":[],"class_list":["post-22829","post","type-post","status-publish","format-standard","hentry","category-deficiencia","category-noticias"],"yoast_head":"\nParalisia cerebral: dos aspectos f\u00edsicos \u00e0 inclus\u00e3o social -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/inclusivenews.com.br\/?p=22829\" \/>\n<meta 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