{"id":262,"date":"2008-05-19T15:03:00","date_gmt":"2008-05-19T15:03:00","guid":{"rendered":"http:\/\/agenciainclusive.wordpress.com\/2008\/05\/19\/irmaos-de-criancas-com-deficiencia-nos-dizem-o-que-precisamos-saber\/"},"modified":"2008-05-19T15:03:00","modified_gmt":"2008-05-19T15:03:00","slug":"irmaos-de-criancas-com-deficiencia-nos-dizem-o-que-precisamos-saber","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=262","title":{"rendered":"Irm\u00e3os de crian\u00e7as com defici\u00eancia nos dizem o que precisamos saber"},"content":{"rendered":"

O Projeto de Apoio aos Irm\u00e3os, dirigido por Don Meyer, criador dos Manoshops e co-autor de Manoshops: Oficinas para irm\u00e3os de Crian\u00e7as com Necessidades Especiais, Edi\u00e7\u00e3o Revisada, possibilitou uma discuss\u00e3o na ManoNet, uma lista de troca de mensagens especialmente para irm\u00e3os adultos de pessoas com defici\u00eancia, para descobrir o que irm\u00e3os e irm\u00e3s gostariam que os outros entendessem sobre o que significa ser irm\u00e3o de algu\u00e9m com defici\u00eancia. Aqui est\u00e3o 20 dos pontos principais que eles recomendam que os pais levem em considera\u00e7\u00e3o:
\n<\/a>
\n1.Direito \u00e0 Vida Pr\u00f3pria
\nPais e profissionais envolvidos com a aten\u00e7\u00e3o ao irm\u00e3o (ou \u00e0 irm\u00e3) n\u00e3o devem assumir sobre responsabilidades que afetem os irm\u00e3os sem uma discuss\u00e3o franca e aberta. \u201cNada sobre n\u00f3s sem n\u00f3s\u201d – uma frase popular entre auto-defensores com defici\u00eancia \u2013 se aplica aos irm\u00e3os tamb\u00e9m. Auto-determina\u00e7\u00e3o, afinal de contas, e para todos.<\/p>\n

2.Levar em Conta as Preocupa\u00e7\u00f5es dos Irm\u00e3os
\nAssim como os pais, irm\u00e3os e irm\u00e3s passar\u00e3o por um turbilh\u00e3o de emo\u00e7\u00f5es relacionadas a seus irm\u00e3os com defici\u00eancia. Esses sentimentos devem ser esperados e reconhecidos. Uma vez que os irm\u00e3os e irm\u00e3s ter\u00e3o provavelmente uma rela\u00e7\u00e3o mais longa com a pessoa com defici\u00eancia, os pais e profissionais envolvidos devem levar em conta suas preocupa\u00e7\u00f5es, que v\u00e3o se modificando ao longo do tempo.<\/p>\n

3.Expectiativas para Irm\u00e3os com Desenvolvimento T\u00edpico
\nAs fam\u00edlias devem ter expectativas alta para todos os seus filhos. Alguns irm\u00e3os e irm\u00e3s, por\u00e9m, reagem \u00e0 defici\u00eancia de seu irm\u00e3o colocando expectativas irreais e altas demais para si pr\u00f3prios, e alguns acham que devem de alguma forma compensar pela defici\u00eancia de seu irm\u00e3o. Os pais podem ajudar seus filhos com desenvolvimento t\u00edpico determinando expectativas claras e poss\u00edveis e dando-lhes apoio incondicional<\/p>\n

4.Esperar Comportamento T\u00edpico de Irm\u00e3os com Desenvolvimento T\u00edpico
\nEmbora dif\u00edcil para os pais se darem conta, provoca\u00e7\u00f5es, xingamento, discuss\u00f5es e outras formas de conflito s\u00e3o comuns entre a maioria de irm\u00e3os e irm\u00e3s \u2013 mesmo quando um deles tem defici\u00eancia. Apesar de como o conflito entre irm\u00e3os pode ser, a mensagem que fica para muitos irm\u00e3os e irm\u00e3s \u00e9: \u201cDeixe o seu irm\u00e3o em pas. Voc\u00ea \u00e9 maior, mais forte, voc\u00ea deve se dar conta disso. \u00c9 sua obriga\u00e7\u00e3o ceder.\u201d Irm\u00e3os com desenvolvimento t\u00edpico merecem uma vida onde eles, como as outras crian\u00e7as, \u00e0s vezes se comportam mal, ficam zangados e brigam com seus irm\u00e3os.<\/p>\n

5.Expectativas para o Membro da Fam\u00edlia com Defici\u00eancia
\nQuando as fam\u00edlias t\u00eam expectativas altas para seus filhos com defici\u00eancia, todos ser\u00e3o beneficiados. At\u00e9 onde for poss\u00edvel, os pais devem ter as mesmas expectativas para o filho com defici\u00eancia com respeito a tarefas e responsabilidade pessoal que tem com rela\u00e7\u00e3o aos filhos sem defici\u00eancia. Expectativas similares n\u00e3o apenas fomentar\u00e1 a independ\u00eancia , como tamb\u00e9m minimizar\u00e1 o ressentimento sentido pelos irm\u00e3os quando s\u00e3o estipulados dois tipos de regras \u2013 uma para eles e outras para os irm\u00e3os com defici\u00eancia.<\/p>\n

6.Direito a um Ambiente Seguro
\nAlguns irm\u00e3os vivem com seus irm\u00e3os que t\u00eam comportamento dif\u00edcil. Outros irm\u00e3os assumem responsabilidades para eles mesmos e para seus irm\u00e3os que v\u00e3o al\u00e9m de sua capacidade e colocam todos em uma situa\u00e7\u00e3o vulner\u00e1vel. A seguran\u00e7a pessoal dos outros irm\u00e3os deve ser t\u00e3o resguardada quanto a seguran\u00e7a pessoal do irm\u00e3o com defici\u00eancia.<\/p>\n

7.Oportunidade de Encontro com Outros Irm\u00e3os
\nPara a maioria dos pais, a id\u00e9ia de \u201ccaminhar sozinho\u201d \u2013 criar uma crian\u00e7a com defici\u00eancia sem a vantagem de conhecer outros pais em situa\u00e7\u00e3o similar \u2013 seria inimagin\u00e1vel. Mesmo assim, isso ocorre rotineiramente aos irm\u00e3os e irm\u00e3s. ManoShops, listas de discuss\u00e3o como a ManoNet e ManoKids, e outras iniciativas oferecem aos irm\u00e3os o apoio e a valida\u00e7\u00e3o do bom-senso que os pais t\u00eam em programas dirigidos para m\u00e3es e pais. Irm\u00e3os e irm\u00e3s \u2013 como os pais \u2013 gostam de saber que n\u00e3o est\u00e3o sozinhos com suas vit\u00f3rias e preocupa\u00e7\u00f5es particulares.<\/p>\n

8.Oportunidades de Obter Informa\u00e7\u00e3o
\nAo longo de suas vidas, irm\u00e3os e irm\u00e3s t\u00eam uma necessidade de informa\u00e7\u00e3o sobre a defici\u00eancia de seu irm\u00e3o que vai se transformando com o tempo \u2013 e seu tratamento e implica\u00e7\u00f5es. Os irm\u00e3os t\u00eam maior seguran\u00e7a quando os pais e os profissionais envolvidos T\u00eam a iniciativa de dar informa\u00e7\u00f5es relevantes. Qualquer ag\u00eancia que represente uma defici\u00eancia espec\u00edfica ou doen\u00e7a, e prepara material para pais e outros adultos, deve tamb\u00e9m preparar material para os irm\u00e3os e leitores mais novos.<\/p>\n

9.Preocupa\u00e7\u00f5es dos Irm\u00e3os a respeito do Futuro
\nIrm\u00e3os e irm\u00e3s devem ser ouvidos sobre se e como eles se envolver\u00e3o nas vidas de seus irm\u00e3os com defici\u00eancia quando forem adultos e o n\u00edvel, tipo e dura\u00e7\u00e3o deste envolvimento. Quando os pais fazem planos para o futuro de seus filhos com defici\u00eancia, eles podem tranq\u00fcilizar seus filhos ouvindo suas sugest\u00f5es, considerando planos alternativos e levando em conta que a disponibilidade de sues filhos pode mudar ao longo do tempo. Quando os irm\u00e3os e irm\u00e3s s\u00e3o chamados para conversar e recebem a mensagem cedo de que eles contam com o apoio de seus pais para realizar seus pr\u00f3prios sonhos, seu envolvimento futuro ser\u00e1 uma escolha, no lugar de uma obriga\u00e7\u00e3o.<\/p>\n

10.Incluindo Tanto Filhos quanto Filhas
\nAssim como as filhas normalmente s\u00e3o os membros da fam\u00edlia que cuidam dos pais quando envelhecem, irm\u00e3s adultas s\u00e3o geralmente as que v\u00e3o tomar conta do irm\u00e3o com defici\u00eancia quando seus pais faltarem ou n\u00e3o puderem mais dar conta do recado. Uma avalia\u00e7\u00e3o profunda sobre como as responsabilidades podem ser divididas entre rm\u00e3os e irm\u00e3s deve ser realizada.<\/p>\n

11.Comunica\u00e7\u00e3o
\nEmbora a boa comunica\u00e7\u00e3o seja sempre importante, ela \u00e9 especialmente importante nas fam\u00edlias onde existe uma crian\u00e7a com defici\u00eancia. Um curso sobre como escutar ativamente pode ajudar a melhorar a comunica\u00e7\u00e3o entre todos os membros da fam\u00edlia, e livros como Como falar de maneira que as crian\u00e7as ou\u00e7am e Ou\u00e7a, de modo que as crian\u00e7as falem (2004) e Irm\u00e3os sem Rivalidade (1999), ambos de Adele Faber e Elaine Mazlish, d\u00e3o boas dicas sobre a comunica\u00e7\u00e3o com crian\u00e7as.<\/p>\n

12.Tempo Exclusivo com os Pais
\nAs crian\u00e7as precisam saber da boca de seus pais que eles se importam com elas enquanto indiv\u00edduos. Quando os pais conseguem abrir um espa\u00e7o na agenda atribulada para comer um hamburguer com o filho individualmente, isso expressa uma mensagem que ele pode contar com os pais tamb\u00e9m e abre uma excelente oportunidade de falar sobre uma s\u00e9rie de assuntos.<\/p>\n

13.Celebre as Conquistas de Todas as Crian\u00e7as
\nDurante anos n\u00f3s encontramos filhos cujos pais n\u00e3o foram a sua formatura no ensino m\u00e9dio \u2013 mesmo quando o filhos eram os oradores da turma \u2013 porque os pais n\u00e3o podiam deixar o filho com defici\u00eancia. Tamb\u00e9m encontramos irm\u00e3os cujos casamentos foram ditados de acordo com as necessidades de seus irm\u00e3os. A necessidade especial de uma crian\u00e7a n\u00e3o pode comprometer as conquistas e ocasi\u00f5es especiais de outra. H\u00e1 fam\u00edlias que encontram solu\u00e7\u00f5es criativas e se esfor\u00e7am para ser flex\u00edveis, o que ajuda que os feitos de todos os membros da fam\u00edlia sejam comemorados.<\/p>\n

14.A Perspectiva dos Pais \u00e9 mais Importante do que a Defici\u00eancia em Si
\nOs pais devem se lembrar que a sua interpreta\u00e7\u00e3o sobre a defici\u00eancia de seu filho ter\u00e1 uma grande influ\u00eancia na adapta\u00e7\u00e3o do seu filho com desenvolvimento t\u00edpico do que a defici\u00eancia propriamente dita. Quando os pais procurarem por apoio, informa\u00e7\u00e3o e ajuda para eles pr\u00f3prios ele d\u00e3o o exemplo de resili\u00eancia, e comportamentos e atitudes saud\u00e1veis para seus filhos.<\/p>\n

15.Inclua os Irm\u00e3os na Defini\u00e7\u00e3o de \u201cFam\u00edlia\u201d
\nMuitas ag\u00eancias de servi\u00e7o social, de sa\u00fade, e educa\u00e7\u00e3o defendem um compromisso de \u201cservi\u00e7os centrados na fam\u00edlia\u201d, mas seguem ignorando os membros da fam\u00edlia que ter\u00e3o um relacionamento mais longo com a pessoa com defici\u00eancia. S\u00f3 quando os irm\u00e3os e irm\u00e3s recebem as considera\u00e7\u00f5es de que necessitam, \u00e9 que as ag\u00eancias poder\u00e3o alegar que oferecem \u201cservi\u00e7os centrados na fam\u00edlia\u201d.<\/p>\n

16.Chegar ativamente aos Irm\u00e3os e Irm\u00e3s
\nPais e profissionais devem considerar convidar (mas n\u00e3o for\u00e7ar) irm\u00e3os e irm\u00e3s a comparecerem \u00e0s reuni\u00f5es sobre o programa de educa\u00e7\u00e3o ou servi\u00e7os familiares, planejamentos de transi\u00e7\u00e3o e visitas a cl\u00ednicas. Os irm\u00e3os freq\u00fcentemente t\u00eam inquieta\u00e7\u00f5es leg\u00edtimas que podem ser respondidas pelos profissionais de aten\u00e7\u00e3o. Irm\u00e3os e irm\u00e3s tamb\u00e9m t\u00eam opini\u00f5es informadas e perspectivas que podem contribuir positivamente para a equipe de seu irm\u00e3o com defici\u00eancia.<\/p>\n

17.Aprender mais sobre a Vida como um Irm\u00e3o
\nQualquer um interessado em fam\u00edlias deve se interessar em irm\u00e3os e suas inquieta\u00e7\u00f5es. Pais e profissionais podem aprender mais sobre a vida de um irm\u00e3o facilitando ManoShops, organizando uma discuss\u00e3o com irm\u00e3os ou lendo livros escritos por irm\u00e3os e irm\u00e3s. Sugest\u00f5es de como organizar esses eventos est\u00e3o dispon\u00edveis no Projeto de Apoio a Irm\u00e3os. Visite o site http:\/\/www.siblingsupport.org\/ (informa\u00e7\u00e3o em ingl\u00eas) para uma bibliografia de livros relacionados ao tema.<\/p>\n

18.Criar Programas Locais Especificamente para Irm\u00e3os e Irm\u00e3s
\nSe a sua comunidade tem um programa de pai para pai ou um grupo de apoio parecido, uma boa pergunta seria: Por que n\u00e3o h\u00e1 apoio equivalente para os irm\u00e3os? Assim com os pais, irm\u00e3os e irm\u00e3s se beneficiam de conversar com outros que \u201cos entenda\u201d. ManoShops e outros programas para irm\u00e3os em idade pre-escolar, escolar, adolescentes e adultos est\u00e3o aumentando em n\u00famero. O Projeto de Apoio aos Irm\u00e3os, que mant\u00e9m uma banco de dados de mais de 200 ManoShops e outros programas para irm\u00e3os, d\u00e1 o treinamento e assist\u00eancia t\u00e9cnica e orienta sobre como criar um programa para irm\u00e3os.<\/p>\n

19.Incluir Irm\u00e3s e Irm\u00e3os em Conselhos das Pol\u00edticas Familiares
\nReservando assentos para irm\u00e3os dar\u00e1 ao Conselho uma perspectiva \u00fanica, que refletir\u00e1 nas preocupa\u00e7\u00f5es das ag\u00eancias de aten\u00e7\u00e3o para o bem-estar dos irm\u00e3os e irm\u00e3s. Desenvolver pol\u00edticas baseadas nos importantes pap\u00e9is desempenhados pelos irm\u00e3os e irm\u00e3s far\u00e1 com que duas inquieta\u00e7\u00f5es e contribui\u00e7\u00f5es fa\u00e7am parte do compromisso da ag\u00eancia para com as fam\u00edlias.<\/p>\n

20.Investir em Servi\u00e7os para Irm\u00e3os e Irm\u00e3s
\nIrm\u00e3os e irm\u00e3s ter\u00e3o provavelmente o maior impacto no desenvolvimento social de seus irm\u00e3os com defici\u00eancia; eles ser\u00e3o o \u201cmodelo de desenvolvimento t\u00edpico\u201d para seus irm\u00e3os por toda vida. Eles provavelmente estar\u00e3o presentes nas vidas de seus irm\u00e3os por mais tempo que qualquer outra pessoa \u2013 mais tempo que seus pais e certamente mais do que profissionais de aten\u00e7\u00e3o. Apesar disso, existe pouco investimento para apoiar projetos que ajudem \u00e0s irm\u00e3os ou irm\u00e3s a ter a informa\u00e7\u00e3o, habilidades e suporte de que necessitam. Ag\u00eancias governamentais deveriam investir nesses membros da fam\u00edlia que possivelmente ter\u00e3o papel fundamental no permanente bem-estar das pessoas com defici\u00eancia.<\/p>\n

Adaptado de Sibshops, de Don Meyer r Patricia Vadasy<\/p>\n

Tradu\u00e7\u00e3o Patricia Almeida para a Ag\u00eancia Inclusive
\nwww.agenciainclusive.blogspot.com<\/a><\/p>\n

Siblings of children with disabilities tell us what we need to know<\/p>\n

The Sibling Support Project<\/a>, directed by Don Meyer, creator of Sibshops and co-author of Sibshops: Workshops for Siblings of Children with Special Needs, Revised Edition<\/a>, facilitated a discussion on SibNet, a listserv especially for adult siblings of people with disabilities, to find out what brothers and sisters would like others to understand about what it means to be the sibling of someone with special needs. Here are 20 key points they advise parents and service providers to bear in mind:<\/p>\n

1. The Right to One’s Own Life
\nParents and service providers should not make assumptions about responsibilities that affect siblings without a frank and open discussion. “Nothing about us without us”\u2014a phrase popular with self-advocates who have disabilities\u2014applies to siblings as well. Self-determination, after all, is for everyone.
\n2. Acknowledging Siblings’ Concerns
\nLike parents, brothers and sisters will experience a wide array of emotions related to their siblings with special needs. These feelings should be both expected and acknowledged. Because brothers and sisters will most likely have the longest-lasting relationship with the person who has a disability, parents and providers should make a point of understanding their concerns as they evolve over time.
\n3. Expectations for Typically Developing Siblings
\nFamilies need to set high expectations for all of their children. Some brothers and sisters, however, react to their siblings’ disability by setting unrealistically high expectations for themselves, and some feel that they must somehow compensate for their siblings’ special needs. Parents can help their typically developing children by conveying clear expectations and unconditional support.
\n4. Expect Typical Behavior from Typically Developing Siblings
\nAlthough difficult for parents to watch, teasing, name calling, arguing, and other forms of conflict are common among most brothers and sisters\u2014even when one has special needs. Regardless of how typical sibling conflict might be, the message sent to many brothers and sisters is, “Leave your sibling alone. You are bigger, you are stronger, you should know better. It is your job to compromise.” Typically developing siblings deserve a life where they, like other children, sometimes misbehave, get angry, and fight with their siblings.
\n5. Expectations for the Family Member with Special Needs
\nWhen families have high expectations for their children with special needs, everyone will benefit. To the extent possible, parents should have the same expectations for the child with special needs regarding chores and personal responsibility as they do for their typically developing children. Not only will similar expectations foster independence, they will also minimize the resentment experienced by siblings when there are two sets of rules\u2014one for them and another for their sibs who have special needs.
\n6. The Right to a Safe Environment
\nSome siblings live with brothers and sisters who have challenging behaviors. Other siblings assume responsibilities for themselves and their siblings that go beyond their age level and place all parties in vulnerable situations. Siblings deserve to have their own personal safety given as much importance as the family member with special needs.
\n7. Opportunities to Meet Peers
\nFor most parents, the thought of “going it alone”\u2014raising a child with special needs without the benefit of knowing another parent in a similar situation\u2014would be unthinkable. Yet, this routinely happens to brothers and sisters. Sibshops, listservs such as SibNet and SibKids, and similar efforts offer siblings the common-sense support and validation that parents get from Parent-to-Parent programs and similar programs. Brothers and sisters\u2014like parents\u2014like to know that they are not alone with their particular joys and concerns.
\n8. Opportunities to Obtain Information
\nThroughout their lives, brothers and sisters have an ever-changing need for information about their sibling’s disability\u2014and its treatment and implications. Siblings experience a more secure footing when parents and service providers proactively provide helpful information. Any agency that represents a specific disability or illness and prepares materials for parents and other adults should prepare materials for siblings and young readers as well.
\n9. Siblings’ Concerns About the Future
\nBrothers and sisters should have a say in whether and how they will be involved in the lives of their siblings with disabilities as adults and the level, type, and duration of that involvement. As parents make plans for the future of their children with special needs, they can reassure siblings by listening to their suggestions, considering back-up plans, and realizing that their children’s availability may change over time. When brothers and sisters are brought into the loop and given the message early on that they have their parents’ blessing to pursue their own dreams, their future involvement will be a choice instead of an obligation.
\n10. Including Both Sons and Daughters
\nJust as daughters are usually the family members who care for aging parents, adult sisters are usually the family members who look after the family member with special needs when parents no longer can. Serious exploration of sharing responsibilities among sisters and brothers should be considered.
\n11. Communication
\nAlthough good communication is always important, it is especially important in families where there is a child who has special needs. An evening course in active listening can help improve communication among all family members, and books such as How to Talk So Kids Will Listen and Listen So Kids Will Talk (2004) and Siblings without Rivalry (1999) (both by Adele Faber and Elaine Mazlish) provide helpful tips on communicating with children.
\n12. One-on-One Time with Parents
\nChildren need to know from their parents’ deeds and words that their parents care about them as individuals. When parents carve time out of a busy schedule to grab a bite at a local burger joint or window shop at the mall with their children individually, it conveys a message that parents are there for them as well and provides an excellent opportunity to talk about a wide range of topics.
\n13. Celebrate Every Child’s Achievements and Milestones
\nOver the years, we’ve met siblings whose parents did not attend their high school graduation\u2014 even when their children were valedictorians\u2014because the parents were unable to leave their child with special needs. We’ve also met siblings whose wedding plans were dictated by the needs of their sibling. One child’s special needs should not overshadow another’s achievements and milestones. Families who seek respite resources and creative solutions and strive for flexibility can help ensure that the accomplishments of all family members are celebrated.
\n14. Parents’ Perspective Is More Important than the Actual Disability
\nParents would be wise to remember that the parents’ interpretation of their child’s disability will be a greater influence on the adaptation of their typically developing sibling than the actual disability itself. When parents seek support, information, and respite for themselves, they model resilience and healthy attitudes and behaviors for their typically developing children.
\n15. Include Siblings in the Definition of “Family”
\nMany educational, health care, and social service agencies profess a commitment to “family-centered services” but continue to overlook the family members who will have the longest-lasting relationship with the person who has special needs. When brothers and sisters receive the considerations they need, agencies can legitimately claim to offer family-centered services.
\n16. Actively Reach Out to Brothers and Sisters
\nParents and agency personnel should consider inviting (but not requiring) brothers and sisters to attend informational, individualized education program (IEP), individualized family service plans (IFSP), and transition planning meetings and clinic visits. Siblings frequently have legitimate questions that can be answered by service providers. Brothers and sisters also have informed opinions and perspectives and can make positive contributions to the child’s team.
\n17. Learn More About Life as a Sibling
\nAnyone interested in families ought to be interested in siblings and their concerns. Parents and providers can learn more about life as a sib by facilitating a Sibshop, hosting a sibling panel, or reading books by and about brothers and sisters. Guidelines for conducting a sibling panel are available from the Sibling Support Project and in the Sibshop curriculum. Visit the Sibling Support Project’s web site<\/a> for a bibliography of sibling-related books.
\n18. Create Local Programs Specifically for Brothers and Sisters
\nIf your community has a Parent-to-Parent program or a similar parent support effort, a fair question to ask is: Why isn’t there a similar effort for the brothers and sisters? Like their parents, brothers and sisters benefit from talking with others who “get it.” Sibshops and other programs for preschool, school-age, teen, and adult siblings are growing in number. The Sibling Support Project, which maintains a database of more than 200 Sibshops and other sibling programs, provides training and technical assistance on how to create local programs for siblings.
\n19. Include Brothers and Sisters on Advisory Boards and in Policies Regarding Families
\nReserving board seats for siblings will give the board a unique, important perspective and reflect the agency’s concern for the well-being of brothers and sisters. Developing policies based on the important roles played by brothers and sisters will help ensure that their concerns and contributions are part of the agency’s commitment to families.
\n20. Fund Services for Brothers and Sisters
\nBrothers and sisters will likely have the greatest impact on the social development of their siblings; they will be their sibling’s lifelong “typically developing role model.” They will likely be in the lives of their siblings longer than anyone else\u2014longer than their parents and certainly longer than any service provider. Despite this, there is little funding to support projects that will help brothers and sisters get the information, skills, and support they need. Governmental agencies would be wise to invest in these family members likely to play the most critical role in the lasting well-being of people with disabilities.
\n*Adapted from Sibshops: Workshops for Siblings of Children with Special Needs, Revised Edition by Don Meyer & Patricia Vadasy.<\/p>\n


\n\"Free
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O Projeto de Apoio aos Irm\u00e3os, dirigido por Don Meyer, criador dos Manoshops e co-autor de Manoshops: Oficinas para irm\u00e3os de Crian\u00e7as com Necessidades Especiais, Edi\u00e7\u00e3o Revisada, possibilitou uma discuss\u00e3o na ManoNet, uma lista de troca de mensagens especialmente para irm\u00e3os adultos de pessoas com defici\u00eancia, para descobrir o que irm\u00e3os e irm\u00e3s gostariam que 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