{"id":29280,"date":"2016-05-07T03:50:55","date_gmt":"2016-05-07T06:50:55","guid":{"rendered":"http:\/\/www.inclusive.org.br\/?p=29280"},"modified":"2016-05-07T03:50:55","modified_gmt":"2016-05-07T06:50:55","slug":"no-dia-das-maes-movimento-down-da-presente-as-maes-de-criancas-com-microcefalia","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=29280","title":{"rendered":"No Dia das M\u00e3es, Movimento Down d\u00e1 presente \u00e0s m\u00e3es de crian\u00e7as com microcefalia"},"content":{"rendered":"
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<\/h1>\n<\/header>\n
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\"IMG_6618\"<\/a><\/i><\/p>\n

ONG criou guia de acolhimento para fam\u00edlias de crian\u00e7as com\u00a0microcefalia, com apoio do grupo Abra\u00e7o a Microcefalia<\/i><\/p>\n

A chegada de um filho\u00a0numa fam\u00edlia tem sempre um impacto enorme. Quando essa crian\u00e7a nasce diferente do esperado, o susto\u00a0\u00e9 maior ainda. Surgem muitas incertezas que v\u00eam do desconhecimento. Essas incertezas podem chegar a\u00a0abalar a rela\u00e7\u00e3o da m\u00e3e com a crian\u00e7a, t\u00e3o fundamental na vida de qualquer um, e preciosa no caso de beb\u00eas com defici\u00eancia. O\u00a0envolvimento e o carinho da\u00a0fam\u00edlia desde cedo vai influenciar diretamente no desenvolvimento e na qualidade de vida da crian\u00e7a.<\/p>\n

Com o nascimento de v\u00e1rios beb\u00eas com\u00a0microcefalia\u00a0associadas ao v\u00edrus zika nos \u00faltimos tempos, muitas fam\u00edlias t\u00eam-se visto desamparadas, sem saber o que fazer. O\u00a0Movimento Down decidiu ent\u00e3o estender a m\u00e3o \u00e0s novas m\u00e3es, oferecendo o apoio que elas precisam nos primeiros momentos.<\/p>\n

Nasce o Guia de Acolhimento para Fam\u00edlias de Crian\u00e7as com\u00a0Microcefalia\u00a0\u2013 Tr\u00eas Vivas para o Beb\u00ea! Nele, m\u00e3es e pais v\u00e3o encontrar as palavras que faltam na hora da not\u00edcia, em que o diagn\u00f3stico ou a suspeita de defici\u00eancia \u00e9 revelada pelos m\u00e9dicos.<\/p>\n

\u201cPraticamente todas as fam\u00edlias de pessoas com defici\u00eancia que encontro tiveram uma hist\u00f3ria traum\u00e1tica na hora em que foi o diagn\u00f3stico foi comunicado. Fizemos\u00a0essa cartilha\u00a0para acalmar as novas m\u00e3es e pais, e dizer que defici\u00eancia n\u00e3o \u00e9 um bicho de sete cabe\u00e7as, nem o fim do mundo. A\u00a0grande maioria das\u00a0fam\u00edlias se adaptam \u00e0 nova realidade e n\u00e3o conseguem imaginar suas vidas sem seus filhos. Quando come\u00e7amos a ver os casos de\u00a0microcefalia\u00a0e o desespero das fam\u00edlias, logo nos identificamos e resolvemos levar at\u00e9 elas palavras que j\u00e1 serviram de aconchego para tanta gente, segundo relatos que recebemos. A fun\u00e7\u00e3o desta publica\u00e7\u00e3o \u00e9\u00a0acolher\u00a0principalmente as m\u00e3es\u201d , explica Patricia Almeida, autora do guia e co-fundadora do Movimento Down.<\/p>\n

Ao ver uma mat\u00e9ria na BBC Brasil com Mila Mendon\u00e7a, advogada de Salvador e m\u00e3e do Gabriel, que nasceu com microcefalia, Patricia buscou o nome na internet e mandou um email para seu escrit\u00f3rio. \u201cPrecis\u00e1vamos da valida\u00e7\u00e3o e parceria de pessoas diretamente envolvidas. Escrevi para a Mila com a maior cara de pau, mas fui muito bem recebida. Depois de ler, ela disse que estava aos prantos e que queria ter escrito o manual\u201d, comenta.<\/p>\n

http:\/\/www.bbc.com\/portuguese\/videos_e_fotos\/2016\/01\/160126_mae_salvador_microcefalia_jc_rm<\/a><\/p>\n

Mila, por sua vez, havia come\u00e7ado na Bahia o Grupo Abra\u00e7o a Microcefalia, de apoio a fam\u00edlias, com palestras, oficinas terap\u00eauticas e um grupo de apoio pelo Whatsapp com mais de 100 usu\u00e1rios. O Abra\u00e7o estava organizando a\u00a0exposi\u00e7\u00e3o \u201cMam\u00e3es Coragem\u201d, inaugurada semana passada, no Salvador Shopping. Rapidamente a parceria foi feita e as fotos da exposi\u00e7\u00e3o passaram a ilustrar o guia \u201cTr\u00eas Vivas para o beb\u00ea!\u201d<\/p>\n

O Movimento Down<\/strong><\/p>\n

O Movimento Down surgiu para reunir conte\u00fados e iniciativas sobre s\u00edndrome de Down que colaborem para o desenvolvimento das potencialidades e que contribuam para a inclus\u00e3o de indiv\u00edduos com s\u00edndrome de Down e defici\u00eancia intelectual em todos os espa\u00e7os da sociedade. Em quatro anos de exist\u00eancia, j\u00e1 produziu materiais para o acolhimento das fam\u00edlias, cadernos de sa\u00fade com as quest\u00f5es que afetam pessoas com s\u00edndrome de Down com maior frequ\u00eancia,\u00a0guias de estimula\u00e7\u00e3o precoce para as fam\u00edlias ajudarem no desenvolvimento de seus filhos em casa e jogos adaptados para educa\u00e7\u00e3o atrav\u00e9s de brincadeiras, entre outras a\u00e7\u00f5es.<\/p>\n

Sua s\u00e9rie de v\u00eddeos tutoriais sobre estimula\u00e7\u00e3o precoce para crian\u00e7as foi pioneira no mundo, ganhou vers\u00e3o em ingl\u00eas\u00a0e recentemente foi apresentada na ONU, em Nova York.<\/p>\n

http:\/\/www.movimentodown.org.br\/2016\/02\/crescer-com-sindrome-de-down-em-ingles\/<\/a><\/p>\n

\u201cQueremos produzir v\u00eddeos de estimula\u00e7\u00e3o precoce como esses para beb\u00eas com microcefalia tamb\u00e9m, pois sabemos como \u00e9 dif\u00edcil para as fam\u00edlias conseguirem vagas para seus filhos realizarem essas terapias. Com os v\u00eddeos os exerc\u00edcios podem ser feitos em casa. Al\u00e9m disso, esperamos come\u00e7ar a criar todo esse material voltado para outras defici\u00eancias. Mas infelizmente n\u00e3o temos recursos no momento\u201d, diz Patricia.<\/p>\n

Sem patroc\u00ednio h\u00e1 mais de de meses, o Movimento Down tem lutado para continuar a desenvolver ferramentas de apoio \u00e0s pessoas com defici\u00eancia e suas fam\u00edlias.<\/p>\n

\u201cEstamos com uma campanha para arrecada\u00e7\u00e3o de colabora\u00e7\u00f5es individuais e abertos a propostas de empresas e organiza\u00e7\u00f5es\u00a0interessadas em cooperar com nossos projetos. Precisamos\u00a0dar prosseguimento a esse trabalho, que sabemos que \u00e9 t\u00e3o importante\u201d finaliza.<\/p>\n

Para colaborar:<\/p>\n

http:\/\/www.movimentodown.org.br\/produto\/r-1000-mes\/<\/a><\/p>\n

contato@movimentodown.org.br<\/a><\/p>\n

Abra\u00e7o a Microcefalia \u2013 Telefone e Whatsapp \u2013 071-99630-7875<\/p>\n

3 VIVAS PARA O BEB\u00ca<\/a><\/strong><\/p>\n

GUIA PARA M\u00c3ES E PAIS DE CRIAN\u00c7AS COM MICROCEFALIA<\/a><\/p>\n

\"Bot\u00e3o<\/a><\/p>\n

REALIZA\u00c7\u00c3O<\/b><\/p>\n

Movimento Down e Abra\u00e7o \u00e0 Microcefalia<\/p>\n

COORDENA\u00c7\u00c3O EDITORIAL E REVIS\u00c3O<\/b><\/p>\n

Maria Ant\u00f4nia Goulart
\nPatricia Almeida
\nMila Mendon\u00e7a
\nEquipe do Abra\u00e7o \u00e0 Microcefalia<\/p>\n

COLABORA\u00c7\u00c3O<\/b><\/p>\n

Bianca Soares Ramos Simone Intrator Denise Amantino F\u00e1bio Adiron<\/p>\n

FOTOS<\/b><\/p>\n

Crisna Pires
\nFotos da exposi\u00e7\u00e3o M\u00e3es Coragem, promovida por Abra\u00e7o \u00e0 Microcefalia<\/p>\n

PROJETO GR\u00c1FICO E DIAGRAMA\u00c7\u00c3O<\/b><\/p>\n

Andrew Pontes de Sousa Raquel Bento Torres<\/p>\n

Fonte:<\/b><\/p>\n

Movimento Down \u2013 Tr\u00eas vivas para o beb\u00ea
\nMinist\u00e9rio da Sa\u00fade
\nFiocruz
\nhttp:\/\/www.minhavida.com.br\/saude\/temas\/microcefalia<\/a><\/p>\n

http:\/\/www.bolsademulher.com\/bebe\/a<\/a>nal-o-que-acontece-com-um-bebe-que-nasce-com-microcefalia-entenda<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

ONG criou guia de acolhimento para fam\u00edlias de crian\u00e7as com microcefalia, com apoio do grupo Abra\u00e7o a Microcefalia.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[38,11,40,48,359],"tags":[],"class_list":["post-29280","post","type-post","status-publish","format-standard","hentry","category-deficiencia","category-direitos-humanos","category-diversidade","category-inclusao","category-microcefalia"],"yoast_head":"\nNo Dia das M\u00e3es, Movimento Down d\u00e1 presente \u00e0s m\u00e3es de crian\u00e7as com microcefalia -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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