{"id":30157,"date":"2017-03-30T06:02:33","date_gmt":"2017-03-30T09:02:33","guid":{"rendered":"http:\/\/www.inclusive.org.br\/?p=30157"},"modified":"2017-03-30T06:02:33","modified_gmt":"2017-03-30T09:02:33","slug":"world-down-syndrome-day-at-the-united-nations-in-geneva-dia-internacional-da-sindrome-de-down-em-genebra","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=30157","title":{"rendered":"World Down Syndrome Day at the United Nations in Geneva – Dia Internacional da S\u00edndrome de Down na ONU em Genebra"},"content":{"rendered":"

\"3<\/p>\n

Participants at the event #MyVoiceMyCommunity in the UN Geneva Palais des Nations.<\/em><\/h6>\n

Last week, the first World Down Syndrome Day celebrations were held at the UN, in Geneva. With the theme “My Voice, My Community,” the events, organized by Down Syndrome International, the International Disability Alliance and co-sponsored by the Permanent Missions of Brazil, Poland, Israel and the United Kingdom to the UN in Geneva, brought together people with Down Syndrome from around the world, their representatives, members of the UN Committee on the Rights of Persons with Disabilities, and countries representatives. The events gave people with Down syndrome the opportunity to express their thoughts and needs to high international authorities.<\/p>\n

World\u00a0Down Syndrome Day, 21\/3, was created by Down Syndrome International in 2006. The date was chosen because it represents the 3 chromosomes 21 that people with Down syndrome have. Brazil presented\u00a0the resolution to\u00a0include World Down Syndrome Day\u00a0in\u00a0the UN official calendar in 2011, calling the 193 UN Nations to observe the date.<\/p>\n

Foram realizados na \u00faltima semana, os primeiros eventos comemorativos do Dia Internacional da S\u00edndrome de Down na ONU, em Genebra. Com o tema “Minha Voz, Minha Comunidade”, os eventos, organizados pela Down Syndrome International (DSi), a International Disability Alliance (IDA) e co-patrocinados pelas Miss\u00f5es Permanente do Brasil, Pol\u00f4nia, Israel e Reino Unido junto \u00e0 ONU, em Genebra, reuniram pessoas com s\u00edndrome de Down de v\u00e1rias partes do mundo, seus representantes, membros do Comit\u00ea da ONU dos Direitos das Pessoas com Defici\u00eancia e representantes de pa\u00edses. As reuni\u00f5es\u00a0deram \u00e0s pessoas com s\u00edndrome de Down oportunidade de expressar suas ideias e necessidades a altas autoridades internacionais.<\/em><\/p>\n

O Dia Internacional da S\u00edndrome de Down, 21\/3, foi institu\u00eddo pela Down Syndrome International em 2006. A data foi escolhida por representar os 3 cromossomos 21 que as pessoas com s\u00edndrome de Down possuem. O Brasil apresentou a resolu\u00e7\u00e3o para que o Dia Internacional da S\u00edndrome de Down fosse inclu\u00eddo no calend\u00e1rio oficial da ONU em 2011, convocando\u00a0as 193 na\u00e7\u00f5es que comp\u00f5em a\u00a0ONU a observar a data.\u00a0<\/em><\/p>\n

 <\/p>\n

21\/3 – Workshop #MyVoiceMyCommunity<\/strong><\/p>\n

On the 21st of March, a workshop was held for self-advocates to prepare for discussions with the authorities, moderated by the President of Down Syndrome International, Vanessa dos Santos.<\/p>\n

No dia 21 de mar\u00e7o foi realizado um workshop para os auto-defensores se prepararem para as discuss\u00f5es com as autoridades, moderado pela Presidente da Down Syndrome International, Vanessa dos Santos.<\/em><\/p>\n

\"Image<\/p>\n

Participants at the workshop.<\/em><\/h6>\n

\"Sheri.\"<\/p>\n

Cheri Brynard, Down Syndrome International Ambassador, from South Africa.<\/em><\/h6>\n

\"Kate<\/p>\n

Kate Powell, from Down Syndrome Association UK\u00a0addresses the meeting.<\/em><\/h6>\n

\"participantes<\/p>\n

Participants in the workshop.<\/em><\/h6>\n

\"Image<\/p>\n

Participants in the workshop.<\/em><\/h6>\n

\"Image<\/p>\n

Participants in the workshop.<\/em><\/h6>\n

\"patricia<\/p>\n

Patricia Almeida, member of the Board of Trustees, Down Syndrome International.<\/em><\/h6>\n

\"participante<\/p>\n

Participants in the workshop show a picture of their son<\/em><\/h6>\n

 <\/p>\n

21\/3 – Reception to celebrate World Down Syndrome Day at the Brazilian Mission Residence<\/strong><\/p>\n

In the evening, the Representative of the Permanent Mission of Brazil to the UN, Ambassador Maria Nazareth Farani Azev\u00eado, offered a reception at the official residence to celebrate the date. Participants of the event, Ambassadors Representatives from countries like Poland, Israel, Germany, Fiji, Mo\u00e7ambique and Australia and members of the\u00a0UN Committee on the Rights of Persons with Disabilities, that was holding the first meeting of 2017, joined the celebration.<\/p>\n

\u00c0 noite, a Representante da Miss\u00e3o Permanente do Brasil junto \u00e0 ONU, Embaixadora Maria Nazareth Farani Azev\u00eado, ofereceu uma recep\u00e7\u00e3o em celebra\u00e7\u00e3o \u00e0 data na resid\u00eancia oficial. Compareceram ao evento, Embaixadores Representantes de pa\u00edses na ONU, como Pol\u00f4nia, Israel, Alemanha, Fiji, Mo\u00e7ambique e Australia, membros do Conselho da ONU dos Direitos das Pessoas com Defici\u00eancia e participantes com s\u00edndrome de Down e seus representantes.<\/em><\/p>\n

\"teresa<\/p>\n

Hostess of the reception, Ambassador Maria Nazareth Farani Azev\u00eado,\u00a0Representative of the\u00a0Permanent Mission of Brazil to the United Nations Office and other international organizations in Geneva and\u00a0Teresa Degener, Chair of the\u00a0UN Committee on the Rights of Persons with Disabilities.<\/em><\/h6>\n

\"amanda<\/p>\n

Amanda Almeida at the reception.<\/em><\/h6>\n

\"Image<\/p>\n

Ambassador Maria Nazareth Farani Azev\u00eado and Ambassador\u00a0Nazhat Shameem Khan, Mission of Fiji to the UN Geneva.<\/em><\/h6>\n

\"Image<\/p>\n

Cindy Johns, from People First New Zeland, Kate Powell from Down Syndrome Association UK and Robert Martin.<\/em><\/h6>\n

\"Image<\/p>\n

Colin Allen, Chair of the International Disability Alliance (IDA), Vanessa dos Santos.<\/em><\/h6>\n

\"Image<\/p>\n

Ambassador Maria Nazareth Farani Azev\u00eado and Ambassador Pedro Afonso Comiss\u00e1rio, Permanent Mission of Mozambique.<\/em><\/h6>\n
\u00a0\"embaixadora<\/h6>\n
Ambassador Maria Nazareth Farani Azev\u00eado,\u00a0Ana Lucia Arellanos, Presidente de RIADIS, Latin American Network of Non-Governmental Organizations of Persons With Disabilities and their Families and Vanessa dos Santos, President of Down Syndrome International and Ambassador of Germany, Antje Leendertse.<\/em><\/h6>\n

\"Image<\/p>\n

\u00a0Jonas Huskus and Imed Eddine Chakers, members of the\u00a0UN Committee on the Rights of Persons with Disabilities<\/em><\/h6>\n

\"participante.\"<\/p>\n

Participants in the reception<\/em><\/h6>\n

\"robert<\/p>\n

Ambassador Maria Nazareth Farani Azev\u00eado greets Mr Robert Martin, Member of the UN Committee on the Rights of Persons with Disabilities<\/em><\/h6>\n

\"dsa.\"<\/p>\n

Kate Powell, from Down Syndrome Association UK and her support person at the reception.<\/em><\/h6>\n

\"Image<\/p>\n

Ambassador Maria Nazareth Farani Azev\u00eado, Patricia Almeida, member of the Board of Trustees of Down Syndrome International, Ana Lucia Arellanos, Presidente de RIADIS, Latin American Network of Non-Governmental Organizations of Persons With Disabilities and their Families and Vanessa dos Santos, President of Down Syndrome International.<\/em><\/h6>\n

\"Image<\/p>\n

Jonas Huskus and Danlami Basharu members of the\u00a0UN Committee on the Rights of Persons with Disabilities.<\/em><\/h6>\n

\"embaixadores.\"<\/p>\n

Permanent Representatives from Brazil, Ambassador Maria Nazareth Farani Azev\u00eado, Israel, Ambassador Aviva Raz Shechter\u00a0and Poland, Ambassador Piotr Stachanczyk, Sheri Brynard and Vanessa dos Santos, President of Down Syndrome International.<\/em><\/h6>\n

\"chair<\/p>\n

Colin Allen, Chair of the International Disability Alliance (IDA), Vanessa dos Santos and Jo\u00e3o Lucas Quental de Almeida, Minister of the Brazilian Mission.<\/em><\/h6>\n

\"Image<\/p>\n

Colin Allen, Chair of the International Disability Alliance (IDA).<\/em><\/h6>\n

\"cher<\/p>\n

Teresa Degener, Chair of the\u00a0UN Committee on the Rights of Persons with Disabilities, Cheri Brynard and\u00a0Carlos Alberto Parra Dussan, member of the Committee.<\/em><\/h6>\n

\"Image<\/p>\n

Jorge Araya, Secretary of the Committee on the Rights of Persons with\u00a0Disabilities and\u00a0Ana Lucia Arellanos, Presidente de RIADIS, Latin American Network of Non-Governmental Organizations of Persons With Disabilities and their Families.\u00a0<\/em><\/h6>\n

\"quadro\"<\/p>\n

Artist Leca Araujo presents her work “Maria Amanda”, in honour of World Down Syndrome Day. The work was inspired in the campaigh #LotsOfSocks, that highlights the beauty of humane diversity.<\/em><\/h6>\n

\"Image<\/p>\n

Patricia Almeida, Amanda Almeida, Ambassador Maria Nazareth Farani Azev\u00eado and Minister Jo\u00e3o Lucas Quental de Almeida.<\/em><\/h6>\n

\"meias.\"<\/p>\n

Participant wears diverse socks.<\/em><\/h6>\n

\"Image<\/p>\n

Patricia Almeida with participants at the reception.<\/em><\/h6>\n

\"grupo\"<\/p>\n

Vanessa dos Santos, President of Down Syndrome International (left) with participants in the reception.<\/em><\/h6>\n

\"Image<\/p>\n

Vanessa dos Santos, President of Down Syndrome International (right) with participants in the reception.<\/h6>\n

\"Image<\/p>\n

Teresa Degener, Chair of the\u00a0UN Committee on the Rights of Persons with Disabilities, with participants at the reception.<\/em><\/h6>\n

 <\/p>\n

22\/3 – Open Discussion #MyVoiceMyCommunity –\u00a0Enabling people with Down syndrome to speak up, be heard and influence government policy and action, to be fully included in the community<\/strong><\/p>\n

On the 22th of March, self-advocates participated in an interactive dialogue with representatives of countries at the Palais des Nations, headquarters of the Human Rights Council. The event was co-sponsored by Brazil, Poland, Israel and the United Kingdom and attended by representatives from the Missions of Germany, El Salvador, Bulgaria, Poland, Israel, Brazil and the UK, UN agencies and human rights organizations, among others. Self-advocates Sheri Brynard, from South Africa and Kate Powell, from the UK gave presentations. During the debate, country representatives asked how to form self-advocates and promote greater participation of people with Down syndrome in public policy-making. Strategies to achieve greater involvement of people with Down syndrome in the community and decision making processes were discussed. Israeli Ambassador to the UN, Aviva Raz Shechter, reported on the experience of the Israeli Parliament, which receives twenty people with disabilities each year to meet and participate in the legislative work. Member of the UN Committee on the Rights of Persons with Disabilities, Robert Martin, from New Zealand, spoke about the importance of the role of people with intellectual disabilities in bodies such as the Committee and the adaptations needed to participate on an equal basis with others. He share that some of his best friends had Down syndrome. Martin is the first person with an intellectual disability to join the committee and has a support person so that he can participate in the committee on equal terms with the others. Participants raised the issue of a lack of inclusive education at schools in Switzerland. Patricia Almeida, from Down Syndrome International, said that parents should advocate for the Convention on the Rights of Persons with Disabilities, adopted by Switzerland, be implemented in the country and quoted the Comment 4, issued by the Committee on inclusive education. The meeting was considered very productive, and delegates said they wished more events like these are organized at the UN.<\/p>\n

No dia 22, auto-defensores participaram de um di\u00e1logo interativo com representantes dos pa\u00edses no Palais des Nations, sede do Conselho dos Direitos Humanos. O evento foi co-patrocinado por Brasil, Pol\u00f4nia, Israel e Reino Unido e \u00a0compareceram representantes das miss\u00f5es da Alemanha, El Salvador, Bulgaria, Pol\u00f4nia, Israel, Brasil, Reino Unido, ag\u00eancias da ONU e organiza\u00e7\u00f5es de direitos humanos, entre outros. As auto-defensoras Sheri Brynard, da \u00c1frica do Sul, e Kate Powell, do Reino Unido, fizeram apresenta\u00e7\u00f5es. Durante o debate, representantes dos pa\u00edses perguntaram como formar auto-defensores e promover maior participa\u00e7\u00e3o de pessoas com s\u00edndrome de Down na elabora\u00e7\u00e3o de pol\u00edticas p\u00fablicas. Foram discutidas estrat\u00e9gias para maior envolvimento de pessoas com s\u00edndrome de Down na comunidade e nas tomadas de decis\u00e3o. A Embaixadora de Israel junto \u00e0 ONU, Aviva Raz Shechter, relatou a experi\u00eancia do parlamento israelense, que recebe vinte pessoas com defici\u00eancia a cada ano para que conhe\u00e7am e participem dos trabalhos legislativos. O membro do comit\u00ea da ONU dos Direitos das Pessoas com Defici\u00eancia, Robert Martin, da Nova Zel\u00e2ndia, falou sobre a import\u00e2ncia do protagonismo de pessoas com defici\u00eancia intelectual em \u00f3rg\u00e3os como o Comit\u00ea e das adapta\u00e7\u00f5es necess\u00e1rias \u00e0 participa\u00e7\u00e3o em igualdade de condi\u00e7\u00f5es com os demais. Ele contou que alguns de seus melhores amigos tinham s\u00edndrome de Down. Martin \u00e9 a primeira pessoa com defici\u00eancia intelectual a integrar o comit\u00ea e conta com uma pessoa de apoio para que possa participar do comit\u00ea em igualdade de condi\u00e7\u00f5es com os demais. Participantes levantaram a quest\u00e3o da falta de inclus\u00e3o escolar\u00a0para alunos com s\u00edndrome de Down nas escolas da Su\u00ed\u00e7a. Patricia Almeida, da Down Syndrome International, disse que os pais tinham que lutar para que a Conven\u00e7\u00e3o sobre os Dieitos das Pessoas com Defici\u00eancia, que foi adotada pela Su\u00ed\u00e7a, fosse implementada, e citou o Coment\u00e1rio n\u00famero 4, sobre educa\u00e7\u00e3o inclusiva, elaborado pelo Comit\u00ea. A reuni\u00e3o foi considerada muito produtiva e os delegados disseram que esperavam que mais eventos como aquele fossem organizados na ONU.\u00a0<\/em><\/p>\n

\"cheri<\/p>\n

Sheri Brynard and Minister Jo\u00e3o Lucas Quental de Almeida, from the Brazilian Mission.<\/em><\/h6>\n

\"brynard.\"<\/p>\n

Cheri Brynard.<\/em><\/h6>\n

\"bresil.\"<\/p>\n

Kate Powell.<\/em><\/h6>\n

\"pol\"<\/p>\n

Sheri Brynard.<\/em><\/h6>\n

\"shona<\/p>\n

Shona Robertson participating via video.<\/em><\/h6>\n

\"part.\"<\/p>\n

Laura Mulcahi, from Moi Aussi.<\/em><\/h6>\n

\"publ.\"<\/p>\n

Participants of the event.<\/em><\/h6>\n

\"isr.\"<\/p>\n

Israeli delegate, Brian Frenkel and Ambassador<\/em><\/h6>\n

\"kate.\"<\/p>\n

Patricia Almeida and Kate Powell.<\/em><\/h6>\n

\"ana.\"<\/p>\n

Ana Lucia Arellanos, Presidente de RIADIS, Latin American Network of Non-Governmental Organizations of Persons With Disabilities and their Families.\u00a0<\/em><\/h6>\n

\"pats.\"<\/p>\n

Participants at the event.<\/em><\/h6>\n

\"filho.\"<\/p>\n

Participants at the event.<\/em><\/h6>\n

\"video\"<\/p>\n

World Video Event from Down Syndrome International – #MyVoiceMyCommunity .<\/em><\/h6>\n

\"pat<\/p>\n

Laura Mulcahi, from Moi Aussi, Patricia Almeida and Isabela Pimentel.<\/em><\/h6>\n

\"wdsd\"<\/p>\n

Patricia Almeida and Kate Powell.<\/em><\/h6>\n

\"rob<\/p>\n

Robert Martin.<\/em><\/h6>\n

\"james\"<\/p>\n

Patricia Almeida and James\u00a0McLaughlin, diplomat from the British Mission<\/em><\/h6>\n

\"wdsd\"<\/p>\n

Participants of the event.<\/em><\/h6>\n

\"cher\"<\/p>\n

Vanessa dos Santos, President of Down Syndrome International and Cheri Brynard.<\/em><\/h6>\n

\"eze\"<\/p>\n

Patricia Almeida and Ezequiel Gerd Chamorro Petersen, diplomat from the Brazilian Mission.<\/em><\/h6>\n

Photos: Paula Dias Leite<\/p>\n

Source: Inclusive<\/p>\n","protected":false},"excerpt":{"rendered":"

Participants at the event #MyVoiceMyCommunity in the UN Geneva Palais des Nations. Last week, the first World Down Syndrome Day celebrations were held at the UN, in Geneva. With the theme “My Voice, My Community,” the events, organized by Down Syndrome International, the International Disability Alliance and co-sponsored by the Permanent Missions of Brazil, Poland, […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[103,5,38,11,40,48,26,4,342,49,396],"tags":[],"class_list":["post-30157","post","type-post","status-publish","format-standard","hentry","category-comunidades","category-convencao","category-deficiencia","category-direitos-humanos","category-diversidade","category-inclusao","category-legislacao","category-noticias","category-onu","category-politicas-publicas","category-wdsd-2017"],"yoast_head":"\nWorld Down Syndrome Day at the United Nations in Geneva - Dia Internacional da S\u00edndrome de Down na ONU em Genebra -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/inclusivenews.com.br\/?p=30157\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"World Down Syndrome Day at the United Nations in Geneva - Dia Internacional da S\u00edndrome de Down na ONU em Genebra -\" \/>\n<meta property=\"og:description\" content=\"Participants at the event #MyVoiceMyCommunity in the UN Geneva Palais des Nations. Last week, the first World Down Syndrome Day celebrations were held at the UN, in Geneva. 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