{"id":677,"date":"2008-07-16T21:27:00","date_gmt":"2008-07-16T21:27:00","guid":{"rendered":"http:\/\/agenciainclusive.wordpress.com\/2008\/07\/16\/nova-portaria\/"},"modified":"2008-07-16T21:27:00","modified_gmt":"2008-07-16T21:27:00","slug":"nova-portaria","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=677","title":{"rendered":"Nova Portaria"},"content":{"rendered":"<p><!-- START OF ACTIVEMETER CODE --><\/p>\n<div><span style=\"font-family:comic sans ms;\">Boas novas!!!!  Nova Portaria do Minist\u00e9rio da  Sa\u00fade amplia a concess\u00e3o de equipamentos de Assist\u00eancia Ventilat\u00f3ria  N\u00e3o-Invasiva para patologias neuromusculares, revogando a Portaria anterior que  s\u00f3 previa tal concess\u00e3o para a Distrofia Muscular Progressiva.<\/span><\/div>\n<div><span style=\"font-family:comic sans ms;\">( Nesse novo rol de patologias, as sequelas da  P\u00f3lio foram contempladas! !!!)<\/span><\/div>\n<div><\/div>\n<div><span style=\"font-family:comic sans ms;\">Fruto de uma longa luta, essa \u00e9 uma conquista  inestim\u00e1vel para tantas pessoas que necessitam desse equipamento (caro, e  portanto, inacess\u00edvel para muitos).<\/span><\/div>\n<div><span style=\"font-family:comic sans ms;\">Viva!!!!!<\/span><\/div>\n<div><span style=\"font-family:comic sans ms;\">Agora \u00e9 lutar por sua  implementa\u00e7\u00e3o.<\/span><\/div>\n<div><\/div>\n<div><span style=\"font-family:comic sans ms;\">Abra\u00e7os festivos!<\/span><\/div>\n<div><\/div>\n<div><span style=\"font-family:comic sans ms;\">Solane<\/span><\/div>\n<div><\/div>\n<div class=\"MsoNormal\"><span style=\"font-family:Times New Roman;font-size:100%;\"> <\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\"><img alt=\"\" width=\"566\" height=\"28\" \/><span> <\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:10pt;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Se\u00e7\u00e3o I <\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:10pt;\"><span style=\"font-family:Times New Roman;font-size:100%;\">N\u00ba 127, sexta-feira, 4 de julho de 2008<\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-family:Times New Roman;font-size:100%;\"> <\/span><\/div>\n<div class=\"MsoNormal\"><strong><span style=\"font-size:8pt;color:#282526;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">PORTARIA N\u00ba 1.370, DE 3 DE JULHO DE  2008<\/span><\/span><\/span><\/strong><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:#2e2c2d;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Institui o Programa de Assist\u00eancia  Ventilat\u00f3ria<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:#2e2c2d;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">N\u00e3o Invasiva aos Portadores  de<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:#2e2c2d;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Doen\u00e7as  Neuromusculares.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">O MINISTRO DE ESTADO DA SA\u00daDE, no uso de  suas<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">atribui\u00e7\u00f5es, e<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Considerando que as doen\u00e7as neuromusculares  englobam um<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">grupo de doen\u00e7as que levam \u00e0 fraqueza  muscular generalizada envolvendo<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">membros superiores e\/ou inferiores, m\u00fasculos  da orofaringe<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">e da respira\u00e7\u00e3o acarretando dificuldades  para engolir, falar e respirar;<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Considerando a necessidade de adotar medidas  que permitam<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">retardar a perda da fun\u00e7\u00e3o vital dos  pacientes portadores de doen\u00e7as<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">neuromusculares ou mesmo evit\u00e1-la, bem como  promover a melhoria<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">da qualidade e expectativa de vida destes  pacientes; e<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Considerando a necessidade de ampliar o  escopo do referido<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Programa contemplando, al\u00e9m da distrofia  muscular progressiva, outras<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">doen\u00e7as neuromusculares cujos portadores,  igualmente aos da<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">primeira, de acordo com a fase de evolu\u00e7\u00e3o  de sua doen\u00e7a, comprometimento<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">da fun\u00e7\u00e3o respirat\u00f3ria e outras determinadas  situa\u00e7\u00f5es<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">cl\u00ednicas, podem se beneficiar com a  utiliza\u00e7\u00e3o de equipamentos que<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">propiciem a ventila\u00e7\u00e3o nasal intermitente de  press\u00e3o positiva, resolve:<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Art. 1\u00ba Instituir, no \u00e2mbito do Sistema  \u00danico de Sa\u00fade &#8211;<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">SUS, o Programa de Assist\u00eancia Ventilat\u00f3ria  N\u00e3o Invasiva aos Portadores<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">de Doen\u00e7as  Neuromusculares.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">\u00a7 1\u00ba O Programa ora institu\u00eddo tem por  objetivo melhorar a<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">aten\u00e7\u00e3o \u00e0 sa\u00fade dos portadores de doen\u00e7as  neuromusculares, adotar<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">medidas que permitam retardar a perda da  fun\u00e7\u00e3o vital destes pacientes<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">ou mesmo evit\u00e1-la, promover a melhoria da  sua qualidade e<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">expectativa de vida e, ainda, ampliar o  acesso \u00e0 ventila\u00e7\u00e3o nasal<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">intermitente de press\u00e3o positiva quando a  mesma estiver indicada.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">\u00a7 2\u00ba O rol das doen\u00e7as neuromusculares a ser  contemplado<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">pelo Programa ser\u00e1 definido, em ato pr\u00f3prio,  pela Secretaria de Aten\u00e7\u00e3o<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">\u00e0 Sa\u00fade.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">\u00a7 3\u00ba Pelo seu escopo restrito \u00e0 distrofia  muscular progressiva,<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">fica extinto o Programa de Assist\u00eancia  Ventilat\u00f3ria N\u00e3o Invasiva<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">aos Pacientes Portadores de Distrofia  Muscular Progressiva institu\u00eddo<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">pela Portaria n\u00ba 1.531\/GM, de 4 de setembro  de 2001.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Art. 2\u00ba Estabelecer que as Secretarias de  Sa\u00fade dos Estados,<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">do Distrito Federal e dos Munic\u00edpios em  Gest\u00e3o Plena do Sistema<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">devam adotar as medidas necess\u00e1rias \u00e0  organiza\u00e7\u00e3o e implanta\u00e7\u00e3o do<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Programa de Assist\u00eancia Ventilat\u00f3ria  N\u00e3o Invasiva aos Portadores de<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Doen\u00e7as Neuromusculares ora  institu\u00eddo.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Art. 3\u00ba Determinar que a Secretaria de  Aten\u00e7\u00e3o \u00e0 Sa\u00fade &#8211;<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">SAS\/MS estabele\u00e7a os crit\u00e9rios t\u00e9cnicos para  a implanta\u00e7\u00e3o do Programa,<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">o rol de doen\u00e7as a serem contempladas, bem  como adote as<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">medidas necess\u00e1rias ao fiel cumprimento do  disposto nesta Portaria.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Art. 4\u00ba Esta Portaria entra em vigor na data  de sua publica\u00e7\u00e3o,<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">com efeitos financeiros a contar da  compet\u00eancia julho de<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">2008.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">Art. 5\u00ba Revogar a Portaria n\u00ba 1.531\/GM, de 4  de setembro de<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">2001, publicada no Di\u00e1rio Oficial da Uni\u00e3o  n\u00ba 172-E, de 6 de setembro<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:black;\"><span style=\"font-family:Times New Roman;\"><span style=\"font-size:100%;\">de 2001, Se\u00e7\u00e3o 1, p\u00e1gina  71.<\/span><\/span><\/span><\/div>\n<div class=\"MsoNormal\"><span style=\"font-size:8pt;color:#343334;\"><span style=\"font-family:Times New Roman;font-size:100%;\">JOS\u00c9 GOMES TEMPOR\u00c3O<\/span><\/span><\/div>\n<p><a href=\"http:\/\/www.activemeter.com\/\" target=\"_blank\" rel=\"noopener\"><br \/>\n<img decoding=\"async\" src=\"http:\/\/am1.activemeter.com\/webtracker\/track.html?method=track&amp;pid=46224&amp;java=0\" border=\"0\" alt=\"Free Hit Counter\" \/><br \/>\n<\/a><br \/>\n<!-- END OF ACTIVEMETER CODE --><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Boas novas!!!! Nova Portaria do Minist\u00e9rio da Sa\u00fade amplia a concess\u00e3o de equipamentos de Assist\u00eancia Ventilat\u00f3ria N\u00e3o-Invasiva para patologias neuromusculares, revogando a Portaria anterior que s\u00f3 previa tal concess\u00e3o para a Distrofia Muscular Progressiva. ( Nesse novo rol de patologias, as sequelas da P\u00f3lio foram contempladas! !!!) Fruto de uma longa luta, essa \u00e9 uma [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[4],"tags":[],"class_list":["post-677","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Nova Portaria -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/inclusivenews.com.br\/?p=677\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Nova Portaria -\" \/>\n<meta property=\"og:description\" content=\"Boas novas!!!! Nova Portaria do Minist\u00e9rio da Sa\u00fade amplia a concess\u00e3o de equipamentos de Assist\u00eancia Ventilat\u00f3ria N\u00e3o-Invasiva para patologias neuromusculares, revogando a Portaria anterior que s\u00f3 previa tal concess\u00e3o para a Distrofia Muscular Progressiva. ( Nesse novo rol de patologias, as sequelas da P\u00f3lio foram contempladas! !!!) 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