{"id":693,"date":"2008-07-20T11:21:00","date_gmt":"2008-07-20T11:21:00","guid":{"rendered":"http:\/\/agenciainclusive.wordpress.com\/2008\/07\/20\/%e2%80%98in-100-years-we-will-look-back-and-see-the-abortion-of-down%e2%80%99s-babies-as-genocide%e2%80%99\/"},"modified":"2008-07-20T11:21:00","modified_gmt":"2008-07-20T11:21:00","slug":"in-100-years-we-will-look-back-and-see-the-abortion-of-downs-babies-as-genocide","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=693","title":{"rendered":"\u2018In 100 years, we will look back and see the abortion of Down\u2019s babies as genocide\u2019"},"content":{"rendered":"<p><!-- START OF ACTIVEMETER CODE --><\/p>\n<p class=\"MsoNormal\"><a rel=\"nofollow noopener\" href=\"http:\/\/www.patriciaebauer.com\/down-syndrome-genocide\" target=\"_blank\">http:\/\/www.patricia ebauer.com\/ down-syndrome- genocide<\/a><\/p>\n<p>The Evening Standard (London)<\/p>\n<p>July 8, 2008 Tuesday<br \/>\n<em><br \/>\n<em>Caroline Armstrong-Jones, who organized last week\u2019s Tory Summer Ball, talks powerfully about changing attitudes towards the handicapped, the arrogance of consultants and future hopes for her own 11-year-old daughter with Down syndrome<\/em><\/em><\/p>\n<p>BYLINE: ALISON ROBERTS<\/p>\n<p>SECTION: A; Pg. 22<\/p>\n<p>ELEVEN-year- old India Armstrong-Jones is sitting at the kitchen table looking at photographs of herself as a younger child. Here she is on holiday in Mustique, and in Wales, sitting on her horse Charlie, who elicits a particular cry of delight.<\/p>\n<p>And here she is wow! at Brooklyn Beckham\u2019s birthday party, which her mother Caroline and father Peregrine, as upmarket events organizers, threw for Posh and Becks.<\/p>\n<p>Most 11-year-olds would coo over this one, but it\u2019s hard to know exactly what India, who has Down syndrome, remembers or recognizes. The Beckhams? India looks blank. Her mother laughs.<\/p>\n<p>\u201cShe\u2019s a very content person. I think a lot of \u2018normal\u2019 children are actually very discontent. They\u2019re always wanting another game or another this or that, which is quite unattractive, really.<\/p>\n<p>\u201cThe high they get from a new toy is over very quickly and you feel there\u2019ll always be a kind of vacuum in their life. India\u2019s not like that.\u201d<\/p>\n<p>Caroline and Peregrine, who is Lord Snowdon\u2019s half-brother, helped to organise the Tory Summer Ball at the Roundhouse in Camden last week where Caroline took to the stage and spoke movingly about taking on the job \u201cfor India\u201d, in the hope that a Cameron government \u201cwill champion the needs and improve the lives of those with disabilities of all kinds\u201d.<\/p>\n<p>India\u2019s most obvious disability is her impaired speech but she is starting, very slowly, to read. Her condition is not immediately obvious: the facial characteristics of Down\u2019s are not pronounced in her case and, anyway, she likes to hide behind her dark, shoulderlength hair.<\/p>\n<p>\u201cI quite often see people do a double-take, not be sure and then come back for another look,\u201d says Caroline dryly.<\/p>\n<p>The Armstrong-Joneses did not know India was a Down syndrome baby until she was born. Caroline had the normal scans but refused any other tests and even then it took several days before doctors gave a definite diagnosis.<\/p>\n<p>Last month, however, it was announced that advances in prenatal testing may herald the routine screening for Down syndrome using a simple blood test instead of the current invasive womb exploration in every expectant mother.<\/p>\n<p>Caroline, 45, is not a particularly emotional woman but my suggestion that this new method of screening is likely to result in most Down syndrome pregnancies in future being terminated provokes in her an unusually impassioned response.<\/p>\n<p>\u201cAs a mother of a Down syndrome child, I know that they have a contribution to make and that they live entirely viable lives,\u201d she says. \u201cThere is something horrific to me in the idea that they might all be weeded out or got rid of.<\/p>\n<p>\u201cI think, on a greater level, a part of me feels that, in 100 or 200 years\u2019 time, what we\u2019re doing now will be seen as a form of genocide, a terrible thing that we all thought was OK because it was legal and because the doctors and politicians said we could do it.<\/p>\n<p>\u201cThere\u2019s a feeling that perhaps it\u2019s too expensive to have these very different people around, or perhaps even too frightening, and I think that\u2019s a huge loss.<\/p>\n<p>\u201cSociety is obsessed with perfection which, paradoxically, is a very flawed way of thinking. I know that I\u2019m in the minority on this and I sometimes feel that I\u2019m the madwoman and everyone else is sane. But for me there\u2019s no grey area here; it\u2019s a black and white issue.\u201d<\/p>\n<p>Caroline welcomes the developments in testing because \u201chaving information is always good and if there\u2019s a heart problem, for example, sometimes that can be repaired before birth\u201d.<\/p>\n<p>And perhaps surprisingly, she does not judge the women who choose abortion.<\/p>\n<p>But she does blame the medical profession for applying pressure to terminate.<\/p>\n<p>She refused invasive prenatal Down syndrome testing on her second child, a perfectly healthy boy called Robert, who\u2019s now eight, but she says she was made to feel positively irresponsible as a result.<\/p>\n<p>\u201cI think a lot of women are horribly pressured by doctors to abort Down\u2019s babies. They\u2019re told they won\u2019t be able to afford it, that it\u2019ll bust up their marriages. I have a friend who was put under intense pressure by [a very eminent London obstetrician] to let him terminate her Down\u2019s syndrome pregnancy.<\/p>\n<p>\u201cIn fact, she was fine with it: she was wealthy, Catholic and had two older children. She very firmly did not want an abortion.<\/p>\n<p>\u201cBut this very clever man spent two hours trying to persuade her otherwise, and he took even her to the edge. The fact is, this man has diagnosed more than 350 Down\u2019s pregnancies and only 11 of those children have been born. Well, that\u2019s nothing to be proud of. As far as I\u2019m concerned, he has blood on his hands.<\/p>\n<p>\u201cThere will always be people who say we love India but we could never do what you\u2019re doing ourselves. Which is fine, I\u2019d never judge them on that.<\/p>\n<p>\u201cBut my own gynecologist always says to me, you don\u2019t know what happens 20 years later, when those women who\u2019ve chosen abortion come into my room and are troubled by what they\u2019ve done. They\u2019ve tried to avoid the inconvenience and potential horror to a perfect life, but actually find it very hard to deal with later on. They see a child like India and it arouses all those feelings.<\/p>\n<p>\u201cI do feel that doctors should allow another voice into that decision-making process, when women are faced with such a choice.\u201d In the days immediately following India\u2019s diagnosis, perhaps inevitably, Caroline did feel \u201cas though my life would never be the same again\u201d. But that feeling quickly passed, she says.<\/p>\n<p>\u201cThe fact is, we all have a little tragedy in our lives. People try so hard to avoid it but you can\u2019t always. I\u2019m not saying that I now see India as a tragedy. I don\u2019t at all. But when she was first born, I had a lot of people saying: \u2018We\u2019re really, really sorry.\u2019 \u201cAnd, of course, it was a shock. But that response was tough and in the end I had to tell them, \u2018Well, it\u2019s fine to feel sorry, but I\u2019m not, and you don\u2019t have to be either.\u2019\u201d<\/p>\n<p>It\u2019s easier, of course, to deal with a handicapped child when you have money. Caroline and Peregrine\u2019s company, Bentley\u2019s Entertainments, organized the wedding of the Queen\u2019s eldest grandchild Peter Phillips and Autumn Kelly at Windsor Castle in May and last week\u2019s ball saw the Conservative Party raise \u00a3600,000.<\/p>\n<p>They also deal with numerous footballers and their Wags including Chelsea\u2019s John Terry and Spurs\u2019 Robbie Keane and regularly cater to the demands of not only the Beckhams but also Sir Elton John and David Furnish.<\/p>\n<p>Caroline is the first to admit that their wealth makes life easier. For the past eight years, for example, India has had a nanny who is also a special-needs teacher, a luxury that most parents could not afford. Her schooling, however, has been entirely state-funded. Until very recently, she went to a mainstream primary in Camberwell where, like most special-needs children, she was given additional one-to-one teaching.<\/p>\n<p>The family have now moved to a flat in Chelsea in order to qualify to send India to their school of choice in the borough, which teaches children with a range of handicaps and disabilities. They have a second home on the north Wales coast, where India keeps her horse, and where, Caroline implies, people are often more accepting of her daughter\u2019s difference.<\/p>\n<p>\u201cWe have a tendency in the city to look at people like mobile bank accounts and to judge them by what car they\u2019ve got or by the size of their house. In Wales, that\u2019s not nearly such an issue.\u201d India\u2019s future is as hard to predict as that of any other 11-year-old. Her mother is a trustee of a charity called Elizabeth FitzRoy Support, which maintains and runs a number of houses for Down syndrome residents across the country; and it may be that India eventually lives in one of these.<\/p>\n<p>\u201cI\u2019d be thrilled if she decided that\u2019s where she wanted to be,\u201d says Caroline.<\/p>\n<p>\u201cThese centers are all about giving people dignity and independence, and it\u2019s amazing what they can achieve given the right environment and support. They all have computers and mobile phones, and they\u2019re all doing things their parents never dreamed they\u2019d do.\u201d But India will make up her own mind.<\/p>\n<p>As I leave, she comes into the kitchen for a packet of crisps, and her mother rolls her eyes.<\/p>\n<p>\u201cThe other day, I asked her brother whether it embarrassed him when India comes and plays with him and other children. And he said, \u2018No, no, it never embarrasses me. It irritates me.\u2019\u201d It\u2019s the classic response of a brother towards a sister, and has little to do with India\u2019s disability.<\/p>\n<p>\u201cYou know,\u201d says Caroline, \u201cfor 90 per cent of the time, I\u2019m not fully conscious that I have a child with any form of handicap. I just have two children. When you have children, you don\u2019t expect mini-me\u2019s, do you? They\u2019re always a challenge. But it\u2019s always a privilege to have them.\u201d<\/p>\n<p>DOWN SYNDROME: THE FACTS<\/p>\n<p>The advent of a reliable maternal blood test for Down\u2019s syndrome has been hailed as a significant breakthrough, particularly for the increasing numbers of women who opt to leave motherhood until their thirties or forties.<\/p>\n<p>The present amniocentesis or chronic villus sampling, both of which involve inserting a needle into the womb, carry a 1-in-100 risk of miscarriage. More than 300 healthy pregnancies a year are lost in Britain because of these Down\u2019s tests.<\/p>\n<p>The new test, developed in Hong Kong, analyses genetic markers from foetal material circulating in the mother\u2019s bloodstream. According to doctors, not only will it save healthy babies and relieve stress on pregnant women but it will also mean that fewer Down\u2019s syndrome children are born.<\/p>\n<p>Copyright 2007 Patricia E Bauer <a href=\"http:\/\/www.activemeter.com\/\" target=\"_blank\" rel=\"noopener\"><br \/>\n<img decoding=\"async\" src=\"http:\/\/am1.activemeter.com\/webtracker\/track.html?method=track&amp;pid=46224&amp;java=0\" border=\"0\" alt=\"Free Hit Counter\" \/><br \/>\n<\/a><br \/>\n<!-- END OF ACTIVEMETER CODE --><\/p>\n","protected":false},"excerpt":{"rendered":"<p>http:\/\/www.patricia ebauer.com\/ down-syndrome- genocide The Evening Standard (London) July 8, 2008 Tuesday Caroline Armstrong-Jones, who organized last week\u2019s Tory Summer Ball, talks powerfully about changing attitudes towards the handicapped, the arrogance of consultants and future hopes for her own 11-year-old daughter with Down syndrome BYLINE: ALISON ROBERTS SECTION: A; Pg. 22 ELEVEN-year- old India Armstrong-Jones [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[4],"tags":[],"class_list":["post-693","post","type-post","status-publish","format-standard","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u2018In 100 years, we will look back and see the abortion of Down\u2019s babies as genocide\u2019 -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/inclusivenews.com.br\/?p=693\" 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