{"id":695,"date":"2008-07-21T13:42:00","date_gmt":"2008-07-21T13:42:00","guid":{"rendered":"http:\/\/agenciainclusive.wordpress.com\/?p=695"},"modified":"2008-07-21T13:42:00","modified_gmt":"2008-07-21T13:42:00","slug":"aprendendo-sobre-amor-com-a-bebe-grace-em-ingles","status":"publish","type":"post","link":"https:\/\/inclusivenews.com.br\/?p=695","title":{"rendered":"Aprendendo sobre amor com a Bebe Grace"},"content":{"rendered":"
\"Descri\u00e7\u00e3o<\/a>
Descri\u00e7\u00e3o do logotipo: palavra inclusive escrita \u00e0 m\u00e3o, em verde, entre par\u00eanteses laranja, com os pingos dos \u201cis\u201d laranja.<\/figcaption><\/figure>\n

Aprendendo sobre amor com a Bebe Grace
\nhttp:\/\/www.boston.com\/news\/local\/articles\/2008\/07\/20\/learning_love_from_ baby_grace<\/a><\/p>\n

TRADU\u00c7\u00c3O: Luciene Code\u00e7o Coelho<\/p>\n

KATHRYN LYNARD SOPER ESCREVEU SOBRE SUA VIDA COM SEU FILHO THOMAS EM SEU “BLOG” E CENTENAS DE M\u00c3ES LHE RESPONDERAM. O CONTE\u00daDO DA CONVERSA VIROU UM LIVRO: “D\u00c1DIVAS (GIFTS) – M\u00c3ES MEDITAM SOBRE COMO SEUS FILHOS COM SD ENRIQUECEM SUAS VIDAS.<\/p>\n

*20 DE JULHO DE 2008.<\/p>\n

ELA N\u00c3O ERA A CRIAN\u00c7A MAIS BONITA DA SALA PORQUE TODAS ERAM BONITAS E COM MENOS DE 3 ANOS, PELE PERFEITA, OLHOS BRILHANTES, T\u00cdMIDA, DOCE SORRISO. MINHA FILHA E EU, POR\u00c9M, FICAMOS ATRA\u00cdDAS, PARTICULARMENTE, POR AQUELA CRIAN\u00c7A QUE NOS LEMBRAVA LUCY SUA FILHINHA, COM SEU DOCE ROSTO REDONDO E SEU CABELO RALO E TINHA UMA LINHA FINA E P\u00c1LIDA NO PEITO MOSTRANDO QUE HAVIA SOFRIDO UMA CIRURGIA NO CORA\u00c7\u00c3O, TAMB\u00c9M.<\/p>\n

“QUANTOS ANOS ELA TEM?” PERGUNTAMOS A SUA M\u00c3E. “SEIS MESES”, A M\u00c3E DISSE E N\u00d3S… DISSEMOS ALGUMA COISA COMO: “T\u00c3O BONITINHA” E “LUCY EST\u00c1 AGORA COM 5 MESES. DIF\u00cdCL DE ACREDITAR.”
\n“QUAL O NOME DE SEU BEB\u00ca?” MINHA FILHA PERGUNTOU. A M\u00c3E DISSE QUE ERA GRACE. A PALAVRA ECOOU PARA N\u00d3S O QUE SIGNIFICAVA: B\u00caN\u00c7\u00c3O, COM TODA A CERTEZA.<\/p>\n

ENT\u00c3O NOS SENTAMOS, MINHA FILHA E EU DE UM LADO DA SALA E, GRACE E SUA M\u00c3E DO OUTRO.<\/p>\n

O LOCUTOR INICIOU O PROGRAMA. ISTO ACONTECEU H\u00c1 UMA SEMANA ATR\u00c1S NO HOTEL SEAPORT EM BOSTON, ONDE FREQUENT\u00c1VAMOS O CONGRESSO NACIONAL DA SD. N\u00d3S NOS INSCREVEMOS PARA O GUIA DE SOBREVIV\u00caNCIA PARA OS PAIS CALOUROS, N\u00c3O PORQUE \u00c9RAMOS CALOURAS, EMBORA MINHA FILHA SEJA BASTANTE NOVA, MAS PORQUE QUER\u00cdAMOS ASSISTIR AOS DOIS PALESTRANTES.
\nLATHRYN LYNARD VIVE EM UTAH, TEM SETE FILHOS E CONTRIBUIU PARA A EDI\u00c7\u00c3O DO LIVRO “GIFTS’ D\u00c1DIVA – M\u00c3ES REFEREM COMO FILHOS COM SD ENRIQUECEM SUAS VIDAS”. JENNIFER GRAF GRONEBER MORA EM MONTANA, TEM 3 FILHOS E PUBLICOU “MAPA RODOVI\u00c1RIO PARA A HOLANDA – COMO ENCONTREI MEU CAMINHO ATRAV\u00c9S DOS 2 PRIMEIROS ANOS DE MEU FILHO COM SD.” AMBAS AS MULHERES T\u00caM BLOGS. AMBAS S\u00c3O ESCRITORAS PRODUTIVAS, AMBAS T\u00caM FILHOS COM SD.<\/p>\n

QUANDO O FILHO DE SOPER NASCEU, N\u00c3O HAVIA LIVROS SOBRE O ASSUNTO PARA LHE DIZER O QUE ELA QUISESSE SABER. HAVIA GUIAS, GR\u00c1FICOS, TRATADOS M\u00c9DICOS E ALGUMAS HIST\u00d3RIAS SOBRE “ESCOLHER” TER UMA CRIAN\u00c7A COM SD, MAS N\u00c3O HAVIA UM \u00daNICO LIVRO NO QUAL AS M\u00c3ES FALASSEM DE SUAS EXPERI\u00caNCIAS, SEUS SENTIMENTOS, SUAS VIDAS E SEUS FILHOS. SOPER ESCREVEU SOBRE SUA VIDA COM THOMAS, EM SEU ‘BLOG’ E CENTENAS DE M\u00c3ES SE PRONUNCIARAM. DA\u00cd MUITAS HIST\u00d3RIAS FORAM COMPARTILHADAS.
\nSOPER COLECIONOU-AS, ORGANIZOU-AS E ENVIOU-AS PARA A “WOODBINE HOUSE”,
\nEDITORA ESPECIALIZADA EM ASSUNTOS SOBRE NECESSIDADES ESPECIAIS E AS
\nHIST\u00d3RIAS FORAM PUBLICADAS; BELOS ENSAIOS ILUSTRADOS COM FOTOS DE LINDAS CRIAN\u00c7AS. EMBORA AS HIST\u00d3RIAS REVELEM TEMOR, PREOCUPA\u00c7\u00c3O, PRECONCEITOS E CONCEITOS ERR\u00d4NEOS, O DENOMINADOR COMUM, O QUE OS MANT\u00c9M UNIDOS, \u00c9 O AMOR.
\nISSO \u00c9 O QUE NINGU\u00c9M REVELA QUANDO VC TEM UMA CRIAN\u00c7A QUE N\u00c3O \u00c9 PERFEITA.
\nESSE AMOR MUDA TUDO. ESSE AMOR IMPULSIONA VC DA CAMA PARA O BER\u00c7O NO MEIO DA NOITE. ESSE AMOR \u00c9 A RAZ\u00c3O PELA QUAL VC CANTA MESMO ESTANDO MUITO CANSADA.
\nESSE AMOR \u00c9 QUE ENCHE SEU CORA\u00c7\u00c3O DE ORGULHO E SEUS OLHOS DE L\u00c1GRIMAS,
\nMUITAS VEZES. ESSE AMOR \u00c9 A RAZ\u00c3O PELA QUAL TODOS OS PAIS, MESMO AQUELES
\nCUJOS FILHOS T\u00caM DESAFIOS QUE PARECEM PENOSOS E OPRESSORES PARA TODO O
\nMUNDO, DIZEM COM MUITA CERTEZA: “EU N\u00c3O TROCARIA MINHA CRIAN\u00c7A
\nPOR NENHUMA OUTRA NO MUNDO.” AMOR \u00c9 O QUE OS TESTES N\u00c3O PODEM MEDIR.<\/p>\n

QUANDO LUCY NASCEU, H\u00c1 CINCO ANOS, “GIFTS” E “ROAD MAP TO HOLLAND” N\u00c3O TINHAM SIDO PUBLICADOS. ALGU\u00c9M NOS OFERTOU “QUANDO COISAS M\u00c1S ACONTECEM COM PESSOAS BOAS”. ALGU\u00c9M TEVE BOA INTEN\u00c7\u00c3O MAS LUCY NUNCA FOI UMA COISA M\u00c1.<\/p>\n

UMA VEZ NO MEIO DE UM “WORKSHOP” DE 90 MINUTOS, QUANDO SOPPER FEZ UMA PAUSA E QUIS SABER SE HAVIA ALGUMA PERGUNTA, A M\u00c3E DE GRACE, LEVANTOU A M\u00c3O, FICOU DE P\u00c9 E AGRADECEU A SOPPER POR COMPILAR SEU LIVRO. ENT\u00c3O, CONTINUOU A EXPLICAR COMO ESTA PEQUENA COLE\u00c7\u00c3O DE HIST\u00d3RIAS SIMPLES, ESCRITAS POR 63 MULHERES COMUNS, SALVARAM A VIDA DE SEU BEB\u00ca GRACE. “T\u00cdNHAMOS UMA SEMANA PARA DECIDIR”, DISSE ELA. SEU TESTE DEU POSITIVO; OS M\u00c9DICOS ESTAVAM COM AR SOMBRIO E A LITERATURA ERA DESOLADORA. TODA A PEQUENA ESPERI\u00caNCIA DE VIDA QUE ELA E SEU MARIDO TINHAM, ESTAVA LIMITADA A SENTIMENTO DE TRISTEZA E DE SUSTO EM RELA\u00c7\u00c3O A QUALQUER PESSOA COM DEFICI\u00caNCIA QUE HAVIAM VISTO MAS QUE N\u00c3O CONHECIAM. O LIVRO “GIFTS” (D\u00c1DIVAS) LEVOU-OS PARA AL\u00c9M DOS ESTERI\u00d3TIPOS E MOSTROU-LHES QUE “DEFICI\u00caNCIA” \u00c9 UMA PALAVRA PESADA E OMISSA, QUE INCLUI TUDO DE MAU DENTRO DELA E DEIXA TUDO DE BOM DO LADO DE FORA.<\/p>\n

“ROAD MAP TO HOLLAND” (MAPA RODOVI\u00c1RIO PARA A HOLANDA) FAZ A MESMA COISA.<\/p>\n

DOIS LIVROS DE HIST\u00d3RIAS DE AMOR. DOIS LIVROS QUE J\u00c1 EST\u00c3O MUDANDO A
\nMANEIRA DAS PESSOAS PENSAREM.<\/p>\n

Learning love from Baby Grace<\/h1>\n\n\n\n
\n

\"Kathryn<\/p>\n<\/td>\n

\n

Kathryn Lynard Soper wrote about her life with her son Thomas in her blog, and hundreds of mothers wrote back. The conversation became a book, Gifts – Mothers Reflect on How Children with Down Syndrome Enrich Their Lives.”<\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

Email<\/a>|<\/span>Print<\/a>|<\/span>Single Page<\/a>|<\/span> Text size \u2013<\/span> +<\/span> By Beverly Beckham<\/p>\n

July 20, 2008<\/p>\n

She wasn’t the prettiest child in the room, because they were all the prettiest, babies still, not one of them over 3, flawless skin, bright eyes, shy, sweet smiles. But my daughter and I were drawn to this particular baby because she reminded us of Lucy, my daughter’s little girl, with her sweet round face and her light wispy hair and the thin pale line on her breastbone that told us she had had heart surgery, too.<\/p>\n

“How old is she?” we asked her mother.<\/p>\n

“Six months,” the mother said, and we gushed and said something like, “So cute.” And “Lucy is 5 now. Hard to believe.”<\/p>\n

“What’s your baby’s name?” my daughter asked.<\/p>\n

The mother said Grace. And we echoed the word, which means blessing, and it hung in the air, a name so weighted with truth.<\/p>\n

Then we sat down, my daughter and I on one side of the room, Grace and her mother on the other.<\/p>\n

And the speakers began their program.<\/p>\n

This happened a week ago at the Seaport Hotel in Boston, where we were attending the National Down Syndrome Congress. We had signed up for the “New Parent’s Survival Guide” not because we are new parents, though my daughter is new enough, but because we wanted to meet the two speakers.<\/p>\n

Kathryn Lynard Soper lives in Utah, has seven children, and contributed to and edited the book. “Gifts – Mothers Reflect on How Children with Down Syndrome Enrich Their Lives.” Jennifer Graf Groneberg lives in Montana, has three children, and has just published “Road Map to Holland – How I Found My Way Through My Son’s First Two Years With Down Syndrome.” Both women have blogs. Both are prolific writers. And both have sons with Down syndrome.<\/p>\n

When Soper’s son Thomas was born, there wasn’t a book for her to read that told her what she wanted to know. There were guides and charts and medical treatises and a few stories about choosing to have a child with Down sydrome, but not a single book in which mothers talked about their experiences, their feelings, their lives, and their children. Soper wrote about her life with Thomas in her blog, and hundreds of mothers wrote back. And, in time, hundreds of stories were shared.<\/p>\n

Soper collected and organized them and sent them to Woodbine House, a publisher specializing in special needs, and the stories got published, beautiful essays interspersed with photographs of beautiful children. Though the stories address fear and worry and preconceptions and misconceptions, the common denominator, what holds them together, is love.<\/p>\n

That’s what no one tells you when you have a child who is not perfect. That love changes everything. That love propels you from the bed to the cradle in the middle of the night. That love is why you sing even when you’re bone tired. That love is what fills your heart with pride and your eyes with tears, sometimes many times. That love is the reason all parents, even parents whose kids have challenges that seem burdensome and overwhelming to everyone else, say with certainty, “I wouldn’t trade my child for any one else’s.”<\/p>\n

Love is what the tests can’t measure.<\/p>\n

When Lucy was born just five years ago, “Gifts” and “Road Map to Holland” hadn’t been published. Someone gave us “When Bad Things Happen to Good People.” Someone meant well, but Lucy was never a bad thing.<\/p>\n

Sometime in the middle of the 90-minute workshop, when Soper paused and asked for questions, Grace’s mother raised her hand, stood up and thanked Soper for compiling her book. Then she went on to explain how this little collection of simple stories written by 63 ordinary women saved her baby Grace’s life.<\/p>\n

“We had a week to decide,” she said. Her test had come back positive, the doctors were somber, the literature bleak. And every bit of life experience she and her husband had was limited to feeling sorry for and frightened by every disabled person they had seen but didn’t know.<\/p>\n

“Gifts” took them beyond the stereotypes and showed them that “disabled” is a loaded and omissive word with all the bad left in and all the good left out.<\/p>\n

“Road Map to Holland” does the same thing.<\/p>\n

Two books of love stories. Two books that are already changing the way people think.<\/p>\n

Beverly Beckham can be reached at bevbeckham@aol. com<\/a>.<\/em><\/p>\n

http:\/\/www.boston. com\/news\/ local\/articles\/ 2008\/07\/20\/ learning_ love_from_ baby_grace<\/a><\/p>\n


\n\"Free
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Aprendendo sobre amor com a Bebe Grace http:\/\/www.boston.com\/news\/local\/articles\/2008\/07\/20\/learning_love_from_ baby_grace TRADU\u00c7\u00c3O: Luciene Code\u00e7o Coelho KATHRYN LYNARD SOPER ESCREVEU SOBRE SUA VIDA COM SEU FILHO THOMAS EM SEU “BLOG” E CENTENAS DE M\u00c3ES LHE RESPONDERAM. O CONTE\u00daDO DA CONVERSA VIROU UM LIVRO: “D\u00c1DIVAS (GIFTS) – M\u00c3ES MEDITAM SOBRE COMO SEUS FILHOS COM SD ENRIQUECEM SUAS VIDAS. *20 […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-container-style":"default","site-container-layout":"default","site-sidebar-layout":"default","disable-article-header":"default","disable-site-header":"default","disable-site-footer":"default","disable-content-area-spacing":"default","footnotes":""},"categories":[7,8,9],"tags":[],"class_list":["post-695","post","type-post","status-publish","format-standard","hentry","category-inclusive","category-textos-e-artigos","category-traducoes"],"yoast_head":"\nAprendendo sobre amor com a Bebe Grace -<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/inclusivenews.com.br\/?p=695\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Aprendendo sobre amor com a Bebe Grace -\" \/>\n<meta property=\"og:description\" content=\"Aprendendo sobre amor com a Bebe Grace http:\/\/www.boston.com\/news\/local\/articles\/2008\/07\/20\/learning_love_from_ baby_grace TRADU\u00c7\u00c3O: Luciene Code\u00e7o Coelho KATHRYN LYNARD SOPER ESCREVEU SOBRE SUA VIDA COM SEU FILHO THOMAS EM SEU “BLOG” E CENTENAS DE M\u00c3ES LHE RESPONDERAM. 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